πŸ†β€οΈβ€πŸ©ΉπŸ† Dicknations for Sassy! Updates & Get Well Wang πŸ†β€οΈβ€πŸ©ΉπŸ†

Well after a 2 hour drive down there. We went to the wrong building and by the time we got the correct address I was considered too late for my appointment so it has to be rescheduled now. They are talking either May or June but they will have to get back to me depending on which location has the next availability.

Of course this is one of the days that I feel the most pain and anger from my stomach. That drive down there was killer and then after all that I still can't see them so. I came home and took a bath and now I'm crawling back in bed with my pain meds. πŸ˜ͺ😑😭
that is terrible!
 
Well. Tomorrow I go in to start working with the GI specialist to see if they can figure out why I'm in so much pain. Between the scans and all the bloodwork, nothing has come back with any clear answers.
There's still a chance it could just be a lot of scar tissue from my surgery, or is chemo related. But we won't know if it is chemo related until I've been of it a little while and we see if it's improving.
One of my liver enzymes has come down. Good news. But a couple are still really high.
But the pain has kept me from eating much and the scale told me I was 118#s this morning. I've been sitting between 124-127.

Because of the pain meds. I've been catching up on all my years of insomnia sleep.
I just miss feeling normal. πŸ˜ͺ

Good luck with the visit.
 
Well after a 2 hour drive down there. We went to the wrong building and by the time we got the correct address I was considered too late for my appointment so it has to be rescheduled now. They are talking either May or June but they will have to get back to me depending on which location has the next availability.

Of course this is one of the days that I feel the most pain and anger from my stomach. That drive down there was killer and then after all that I still can't see them so. I came home and took a bath and now I'm crawling back in bed with my pain meds. πŸ˜ͺ😑😭

That sucks.
 
That sucks.
Thank you Crash. It'll happen. I just don't like being dependant on pain pills.
The more pain I'm in. The less I eat and while I loved seeing 118 on my scale this morning. I'm looking unhealthy now.
 
Well after a 2 hour drive down there. We went to the wrong building and by the time we got the correct address I was considered too late for my appointment so it has to be rescheduled now. They are talking either May or June but they will have to get back to me depending on which location has the next availability.

Of course this is one of the days that I feel the most pain and anger from my stomach. That drive down there was killer and then after all that I still can't see them so. I came home and took a bath and now I'm crawling back in bed with my pain meds. πŸ˜ͺ😑😭
That is awful. The care for sickness is not good now. I am so sorry you have been treated like this. I know there is a schedule, but hang in there.
 
That is awful. The care for sickness is not good now. I am so sorry you have been treated like this. I know there is a schedule, but hang in there.
Thank you. I'm just frustrated because of the distance. 4 hours in traffic and nothing to show for it besides and emptier gas tank. But at least it was sunny enough to drive home with the top down.
I'm going to get my daughter an official chauffeur hat. 🀣
 
Thank you Crash. It'll happen. I just don't like being dependant on pain pills.
The more pain I'm in. The less I eat and while I loved seeing 118 on my scale this morning. I'm looking unhealthy now.
you have a great attitude.

i've had a few near misses on appts. it really irrritates me that it take so long to get the next opening.
 
you have a great attitude.

i've had a few near misses on appts. it really irrritates me that it take so long to get the next opening.
And if they are the ones late. You wait. I understand not holding others up.


I'm trying with the attitude and keeping as positive as possible. There are just some days harder than others.
 
Well after a 2 hour drive down there. We went to the wrong building and by the time we got the correct address I was considered too late for my appointment so it has to be rescheduled now. They are talking either May or June but they will have to get back to me depending on which location has the next availability.

Of course this is one of the days that I feel the most pain and anger from my stomach. That drive down there was killer and then after all that I still can't see them so. I came home and took a bath and now I'm crawling back in bed with my pain meds. πŸ˜ͺ😑😭
Sorry for problems Sassy. Hope you can get the appointment soon.
 
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And if they are the ones late. You wait. I understand not holding others up.


I'm trying with the attitude and keeping as positive as possible. There are just some days harder than others.
I’ve said it before and I’ll say it again, you are a much better person than I am.
Your tolerance is amazing.
I would have strangled everyone in that building!

I’m hoping the pain is the scarring and will ease with a little more time. ❀️
 
I’ve said it before and I’ll say it again, you are a much better person than I am.
Your tolerance is amazing.
I would have strangled everyone in that building!

I’m hoping the pain is the scarring and will ease with a little more time. ❀️
You kill me. You're such a sweetheart. Thank you. This week has been crazy busy and I've barely had a chance to just relax. Today. That's exactly what I'll be doing today. I hope that it'll give my stomach time to settle.

❀️
 
Well after a 2 hour drive down there. We went to the wrong building and by the time we got the correct address I was considered too late for my appointment so it has to be rescheduled now. They are talking either May or June but they will have to get back to me depending on which location has the next availability.

Of course this is one of the days that I feel the most pain and anger from my stomach. That drive down there was killer and then after all that I still can't see them so. I came home and took a bath and now I'm crawling back in bed with my pain meds. πŸ˜ͺ😑😭
That's so frustrating! I hope that the GI specialist can get you back in soon, Sassy. ❀️
 
Sassy and or Wonkey Donkey
I know Sassy had had some bad news with the last appointment.. But can I/We get an update on her condition please.. I do care and am worried from not hearing from her
TIA
 
Sassy and or Wonkey Donkey
I know Sassy had had some bad news with the last appointment.. But can I/We get an update on her condition please.. I do care and am worried from not hearing from her
TIA
My appointment with the GI Got Cancelled and rescheduled for May 15th. So, now I'll go in on the 15th for them.
So, no news.

Friday, I go in to see the Radiologist to find out if he's going to want to do Radiation. That and I will pop in the Wig shop downstairs. I didn't lose all my hair, but it is very thin now. I refuse to go to my daughters wedding at the end of summer with my hair looking like it does. Plus, she gets to pick the color. They want just normal brown. They haven't seen my natural hair color in forever and my future son in law has never seen it.

I've had insomnia for so long now, it's like my body is trying to make up for that and I want to sleep all the time. My watch is telling me I'm even getting better quality sleep right now. I am taking advantage of that. It also makes me feel guilty for not being present.
My nurse said that it is most likely just my body trying to get rid of all the chemo. Chemo usually leaves your body pretty fast, but some of the side effects take longer to flush out.

So, I am doing okay overall. The pain really is kicking my ass though. The team of my doctors are just as frustrated because so far they have no answers. My nurse is going to put in some paper work to have me do a better Scan. Full body or at least chin to pelvis.
All a waiting game..

But thank you Jox for worrying. I'm doing okay. :kiss:
 
My appointment with the GI Got Cancelled and rescheduled for May 15th. So, now I'll go in on the 15th for them.
So, no news.

Friday, I go in to see the Radiologist to find out if he's going to want to do Radiation. That and I will pop in the Wig shop downstairs. I didn't lose all my hair, but it is very thin now. I refuse to go to my daughters wedding at the end of summer with my hair looking like it does. Plus, she gets to pick the color. They want just normal brown. They haven't seen my natural hair color in forever and my future son in law has never seen it.

I've had insomnia for so long now, it's like my body is trying to make up for that and I want to sleep all the time. My watch is telling me I'm even getting better quality sleep right now. I am taking advantage of that. It also makes me feel guilty for not being present.
My nurse said that it is most likely just my body trying to get rid of all the chemo. Chemo usually leaves your body pretty fast, but some of the side effects take longer to flush out.

So, I am doing okay overall. The pain really is kicking my ass though. The team of my doctors are just as frustrated because so far they have no answers. My nurse is going to put in some paper work to have me do a better Scan. Full body or at least chin to pelvis.
All a waiting game..

But thank you Jox for worrying. I'm doing okay. :kiss:
Could wear one of those hats like they do at Kentucky derby. Wishing pain to go away and everything gets back to normal soon princess.
 
And I got to ring the bell. My infusion team was so sweet. They got both my daughter and I each gift cards. They all signed a congrats certificate too. Even the doctor signed it. He's seen me fighting breast cancer and now this. ❀️
That’s incredible Sassy, well done on getting to that bell ring. πŸ‘Šβ€οΈ
 
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