Supporting Red...

Anytime Red
:rose:

Congrats on the promotion, friend. I wish you the best of weekends. :rose: :kiss:
Thank you!! It was a fantastic weekend. I had to work one of the days, but the Sat. I had off, we had a great time as a family. We attended an Ethnic Festival that one of the daughters was volunteering at and enjoyed all sorts of music and different foods. Even did a bit of shopping. ;)

*hugs for Red and snuggles from the fussy little lynx* :rose::heart::kiss:
:kiss: Thank you beautiful. :rose: I love the fussy one and you too. :rose:
 
Figured i would wander in and let you know that i got a new job as well. Today was my last day in the hell hole! Now onto vacation!
 
A few months ago I had to have an MRI to determine if I had MS, thankfully it came back normal. My little sister, she's 28 to my 35, came down with similar symptoms recently and underwent her own MRI. It did not come back normal, so they had her take a Lyme Disease test to rule out Lyme Disease, which it did. However that meant she had to have a spinal tap to rule out MS. Which it did not; it diagnosed it. :(

She is unemployed, no $$, no insurance coverage and lives with my parents. They are already strapped financially. This is going to be so hard for them, both emotionally and financially.

My sister is also not the most stable as far as emotional well being is concerned, so this will make things very difficult for her as well. For all of us really. They were given numbers by the hospital to apply for financial aid, as well as discount prescriptions/free prescriptions.

They are going to start her on steroid IV meds on Tuesday. Five days of it, very hard hitting stuff, I guess. They hope to put it in remission. Right now her neck and the back of her head seems to be where she is having the effects of the disease.

What effects? I know from only what she has shared with me. She's got the tingling feeling in her skin, which I had, but she also has numbness in her neck and head, and sometimes on one whole side of her body. :( They don't know how fast this is moving through her, since they just diagnosed it. She is too see another doctor in July and then her MS doctor (who diagnosed her) in September. I don't get why the long span of time between visits.

I don't want to cry. I want to sit here and be all up and positive, emotionally supportive and there for my parents. They do so much for all of us kids and have given up so much of their time for us, not only as children when they raised us, but as adults when we struggled getting out on our own and becoming independent.

Looking at it all now, if I could have been the one diagnosed with this disease, I would have taken it, just so the three of them wouldn't carry the burden that is going to continue for the rest of her life and theirs. I have a job, insurance, and a home.

*sigh*

:(

:kiss:

*sigh*
 
*huggles for Red* That really stinks hun! :rose:
On (hopefully) happier news how's the new job going?
 
Red, I'm here for you hon. Give your lil sister hugs for each and every one of us.

Thank you. :kiss:

My connection on line comes and goes, which stinks. I'll be typing away and then hit send and no connection. Quite annoying.

She's learning more about it and I've gotten a tip from one Litster here as well as the name of a book to purchase. So I'll pick that up tomorrow, while I'm out in the city.
 
*hugs for Red from mama and baby lynx* :heart::rose::kiss:
That baby is looking so beautiful... :rose: :kiss: *hugs* Thank you.



Thank you. :kiss: :)

-----


I'm going to be ordering a book a friend suggested since I couldn't find it at the bookstores in the city. I did however pick up a book called: Women Living with Muliple Scelorsis. It's about a women who met on the Internet. They got together and wrote this book, though one person was the main writer. I've found it to be a very good read. Not a medical type book with words you can't understand, but a realistic woman to woman talk book, where you get to see into the lives of these couragoeous ladies.

I'm currently about midway through it. I put it down and now my nine year old son is reading it. I don't think it wrong to allow him to, because his aunt is going to probably be experiencing some of these things and he will definitly wonder why. He'll look at her strangely and no matter how I try to verbalize it he may not quite understand.

I know he won't "get it" all by reading either, but maybe it'll open his innocent eyes just enough that he can tilt his head and say... hmm... that may be like that lady in mom's book.
 
Red.
After reading your post, it reminded me of a saying that I used many times in the past. "Never underestimate the power of a child" I used it in the context of the miracles that I used to see on a regular basis. Children, when faced with these types of things see adversity in a totally different way than we can ever imagine. At 9 your son is innocent. He doesn't see failures, only ways to succeed. He may shed some light on this in ways that you never saw.
I have been surrounded by children with adversity, death within mere hours, and have been touched by the words that they have spoken to me and the hugs that I have received. Allow your son to be a part of your sisters life as much as possible. To him this will be just the way his aunt is, and that is that.
He doesn't need to know what Novantrone is or what Tysabri does. He doesnt care about T-cells or macrophages. All he knows is that his Aunt is fighting to get better, and with the information that he is reading he has a base knowledge of what is wrong. You are doing the right thing to keep it normal. Be honest with him at every turn. You will be surprised at what he will learn and teach.
As for you, Thank you for being strong for her. She is going to need all the support she can get. Lean on those who I know have been in contact with you, for they through being there for you, are actually gaining a renewed strength for themselves.
Have a great holiday and hope to see you hopping among the threads soon.

<steps off soapbox>:rose:


I'm going to be ordering a book a friend suggested since I couldn't find it at the bookstores in the city. I did however pick up a book called: Women Living with Muliple Scelorsis. It's about a women who met on the Internet. They got together and wrote this book, though one person was the main writer. I've found it to be a very good read. Not a medical type book with words you can't understand, but a realistic woman to woman talk book, where you get to see into the lives of these couragoeous ladies.

I'm currently about midway through it. I put it down and now my nine year old son is reading it. I don't think it wrong to allow him to, because his aunt is going to probably be experiencing some of these things and he will definitly wonder why. He'll look at her strangely and no matter how I try to verbalize it he may not quite understand.

I know he won't "get it" all by reading either, but maybe it'll open his innocent eyes just enough that he can tilt his head and say... hmm... that may be like that lady in mom's book.
 
Red.
After reading your post, it reminded me of a saying that I used many times in the past. "Never underestimate the power of a child" I used it in the context of the miracles that I used to see on a regular basis. Children, when faced with these types of things see adversity in a totally different way than we can ever imagine. At 9 your son is innocent. He doesn't see failures, only ways to succeed. He may shed some light on this in ways that you never saw.
I have been surrounded by children with adversity, death within mere hours, and have been touched by the words that they have spoken to me and the hugs that I have received. Allow your son to be a part of your sisters life as much as possible. To him this will be just the way his aunt is, and that is that.
He doesn't need to know what Novantrone is or what Tysabri does. He doesnt care about T-cells or macrophages. All he knows is that his Aunt is fighting to get better, and with the information that he is reading he has a base knowledge of what is wrong. You are doing the right thing to keep it normal. Be honest with him at every turn. You will be surprised at what he will learn and teach.
As for you, Thank you for being strong for her. She is going to need all the support she can get. Lean on those who I know have been in contact with you, for they through being there for you, are actually gaining a renewed strength for themselves.
Have a great holiday and hope to see you hopping among the threads soon.

<steps off soapbox>:rose:
:kiss: Thank you. I feel it is better to be honest and truthful whenever one can in whatever type a situation it is. He is also a very bright and overly intelligent kid for the age of 9. He has a mind that absorbs knowledge like a sponge. (He's currently been reading his 8th grade sister's science book). :eek:

Thank you so much for your words. :kiss: They are very much appreciated. I am sure in time I'll be more frequent on the threads. It's just some things are taking precedent over my "Lit-life". *sigh*
 
An interesting day today... my son is leaning toward joining band as he gets into middle school. He wants to play drums, since the guitar isn't part of the school band, though the cello is (did I spell that right?) .
 
Damn it Red.
Hope you took that in the manner twas meant.

Keep your chin up...else the snot runs in yer mouth


:eek:

Blessed be. :rose:

:kiss:
 
(((((((((((((((((((Red)))))))))))))))))))) :kiss: :rose: :heart:

Where are you hun??? I am missing you!!! :(
 
(((Hugs)))

I'm here, just not always here... *sigh* :kiss:

The sister is doing okay. The treatments have done what they are supposed to do ... I guess. Though she seems to be experiencing more things now that the steroids have taken swelling down.

I finished one book on MS and have passed it along to her, as well as ordered more. Informed family I think is the best kind of family to be.

I'm tired.

We leave on a family vacation tomorrow. We're heading West to Yellowstone. Anyone know of anywhere I should visit that tourist wouldn't normally go see?

I'm sorry I've not been around. I'm doing soul searching (I think that is what it is called). :kiss: :heart:

Thank you though for missing me. I've missed you all too. :kiss:
 
(((Hugs)))

I'm here, just not always here... *sigh* :kiss:

The sister is doing okay. The treatments have done what they are supposed to do ... I guess. Though she seems to be experiencing more things now that the steroids have taken swelling down.

I finished one book on MS and have passed it along to her, as well as ordered more. Informed family I think is the best kind of family to be.

I'm tired.

We leave on a family vacation tomorrow. We're heading West to Yellowstone. Anyone know of anywhere I should visit that tourist wouldn't normally go see?

I'm sorry I've not been around. I'm doing soul searching (I think that is what it is called). :kiss: :heart:

Thank you though for missing me. I've missed you all too. :kiss:

Sending lots of hugs, love, and prayers your way. Pass some along to your family. *hugs* :kiss: :rose:

Have a wonderful time on your vacation....stay safe.
 
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