LazzieLace
Virgin
- Joined
- Feb 24, 2012
- Posts
- 13
An interesting discussion.
I have an progressive, destructive, condition that will either cause my death or else a major organ transplant. There is no known cure, because they don't know what the initial cause of the disease is.
For me, I wouldn't go on any clinic trials as I'd find it hard to deal with if I was given a placebo and the drug they were testing proved to be successful. I would worry that the disease might progress too much during the trial, so that the drug they were testing might never be beneficial for me.
Of course, you could argue seeing as participants of the trial give their permission that it is all ethical. Worse is where doctors had links to the drugs companies and only prescribed medication belonging to that company rather than what was best for the patient.
On the other hand, I regularly search the internet for any research or trials done relating to my condition. I don't trust that doctors always know what's best as they are dealing with loads of different conditions and hardly likely to know the latest research. I am trying lots of things to try and fix things because I can't just sit here and let the disease destroy me. Like when it comes to medication, I print out the relevant research and persuade my doctor to put me on this medication to see if it has any impact.
One other problem I see with trials is that they rarely last long enough. In relation to my condition, back in 2000 they declared a drug as being beneficial and reversing some of the damage done by the disease. Then about seven years later, they declared that this drug actually progressed the disease a lot faster. Just look at the FDA watch list and you see drugs which have caused recent problems with patients.
I have an progressive, destructive, condition that will either cause my death or else a major organ transplant. There is no known cure, because they don't know what the initial cause of the disease is.
For me, I wouldn't go on any clinic trials as I'd find it hard to deal with if I was given a placebo and the drug they were testing proved to be successful. I would worry that the disease might progress too much during the trial, so that the drug they were testing might never be beneficial for me.
Of course, you could argue seeing as participants of the trial give their permission that it is all ethical. Worse is where doctors had links to the drugs companies and only prescribed medication belonging to that company rather than what was best for the patient.
On the other hand, I regularly search the internet for any research or trials done relating to my condition. I don't trust that doctors always know what's best as they are dealing with loads of different conditions and hardly likely to know the latest research. I am trying lots of things to try and fix things because I can't just sit here and let the disease destroy me. Like when it comes to medication, I print out the relevant research and persuade my doctor to put me on this medication to see if it has any impact.
One other problem I see with trials is that they rarely last long enough. In relation to my condition, back in 2000 they declared a drug as being beneficial and reversing some of the damage done by the disease. Then about seven years later, they declared that this drug actually progressed the disease a lot faster. Just look at the FDA watch list and you see drugs which have caused recent problems with patients.