For the first time in my life, I am scared

[Guest]

 

[SaucyWench]

Best of luck to you and your son. It sounds like you are strong and will be able to handle whatever is thrown at you. While you are taking care of him (with whatever, if anything, he is diagnosed with) don't forget to take care of yourself too. He can't depend on you if you are stressing out and falling apart.

When my sister was three she was much the same...my parents thought she had neurological problems too. Slow, didn't talk, refused to make eye contact with anyone and was happy to just sit alone for hours and play by herself. They took her to a neurologist and had her tested for various things. Nothing was wrong. She is just very shy, introverted and tends to keep to herself. She's still extremely shy, but she's normal.

Good luck, best wishes and happy thoughts sending your way.

SW

 

[ag2507]

There are a lot of Aspergers, autism, and other support groups all over the country: even now go and fid one that meets near you - they have a lot of literature and there are parents with all ages of children with a variety of difficulties. Children with aspergers are loving happy children with a great sense of humor - but they have a lot of difficulty forming relationships and grasping simple tasks. Parents of older children will tell you that there is light at the end of the tunnel; though you might have to start fighting dirty woth your town to get the services you need or a school with a safe non threatening environment.
Find thse families and work together; you will get a lot more done. Also, try to work with them to arrange sleepovers etc. A night off is a dream for many parents with autistic children and a parent of another autistic child KNOWS the difficulties that other care givers (babysitters) have grasping that this child has NO concept of danger; may seem normal for much of the time then do something so outragously dangerous that any caregiver lulled into a false sense of security might not cope.
Find a group and a parent similarly blessed so you can share your joys as the children grow and can bitch and moan to someone who really understands just how frustrated you are and how lonely the child is.

A

 

[BgMma]

Ths has been very helpful. I know that nothing is proven right now, but he does have some problems that are going to have to be dealt with either way.

I appreciate the good words. I am not trying to milk it, but I had to talk about it.

 

[It'sasecret]

This may be hard but look at your son being diagnosed has a good thing. Once you know what is causing the diffculting he faces it is easiet to treat and help him.

 

[BgMma]

I do everything for my little guy. You are correct, though. I want to do this to make sure he is getting treated right. I would hate to think that he missed something because I was too afraid to see him well.

 

[Hornymama]

My prayers are with you. I'm sure you are nervous and worried as I would be. All children are special creatures in their own way. I know someone who has a daughter with Downs Syndrome and she is the most precious little person.
I remember seeing a show on TV once about an autistic boy and his parents totally changed his diet and that did the trick.
Just remember you were chosen to have this little son because the lord gives the "gifted ones" to only those special people that he knows can deal with it and make their world a loved and safe haven. (Not trying to be religious on you) .
You sound like a wonderful mother. I 'm sure everything will work out.

 

[cally32]

Hi Honey...

I know exactly what you're going through....

At 2 1/2, I was being called in to take my son Rhys home from playgroup... a pattern which carried on for a couple of years until his primary school insisted that he been seen by a consultant.

He was diagnosed with having extreme Asperger's Syndrome and I felt as though my world had fallen apart. The words 'no cure', 'lifelong learning', 'severe social communication probelms' etc rang loudly in my ears. I was devastated... for me and him.

Rhys is ten years old now and is in mainstream education doing incredibly well, both educationally and socially. He does have his unique mannerisms, but they are what his friends love about him. He is extremely loyal, loving and sensitive to the needs of others. He may not fully understand the way people work or their facial expressions in the same way that we do, but he has learnt his own little methods of understanding.

Looking back, I really don't know why I was so worried. It's hard to remember all the things he has done over the years and friends and neighbours remember him with great fondness at all stages of his life.

Please remember, you ae not on your own.... this thread alone shows how many people genuinly care for you. Never be afraid to write what you are feeling - whether it's sadness, happiness, anger, frustration.... let us help you through it.

I will pray for you and Jesse though I know He is looking out for you already...

Loads of love to you

 

[bknight2602]

Hi Honey...

I know exactly what you're going through....

At 2 1/2, I was being called in to take my son Rhys home from playgroup... a pattern which carried on for a couple of years until his primary school insisted that he been seen by a consultant.

He was diagnosed with having extreme Asperger's Syndrome and I felt as though my world had fallen apart. The words 'no cure', 'lifelong learning', 'severe social communication probelms' etc rang loudly in my ears. I was devastated... for me and him.

Rhys is ten years old now and is in mainstream education doing incredibly well, both educationally and socially. He does have his unique mannerisms, but they are what his friends love about him. He is extremely loyal, loving and sensitive to the needs of others. He may not fully understand the way people work or their facial expressions in the same way that we do, but he has learnt his own little methods of understanding.

Looking back, I really don't know why I was so worried. It's hard to remember all the things he has done over the years and friends and neighbours remember him with great fondness at all stages of his life.

Please remember, you ae not on your own.... this thread alone shows how many people genuinly care for you. Never be afraid to write what you are feeling - whether it's sadness, happiness, anger, frustration.... let us help you through it.

I will pray for you and Jesse though I know He is looking out for you already...

Loads of love to you

The education systems have been tremendously upgraded since the 70' eduaction laws. Part of the success of yur son is due in large part because of this. More money was put into educating the educators in how to blend instruction to allow tose with disabilities to function in society, and to be mainstreamed when they leanred stragies that help them be successful.

 

[BgMma]

This has been great. I feel so much better knowing that there are alternatives. I think I had myself convinced that Jesse was going to be a bad case. That was my paranoia pushing its way in.
This has been amazing, knowing that there are so many others here that have had the same issues.
I cannot thank everyone enough for being here. There aren't enough words.
T

 

[Hornymama]

This has been great. I feel so much better knowing that there are alternatives. I think I had myself convinced that Jesse was going to be a bad case. That was my paranoia pushing its way in.
This has been amazing, knowing that there are so many others here that have had the same issues.
I cannot thank everyone enough for being here. There aren't enough words.
T

I can't speak for the others but no need for thanks. this is what we are here for.... to fuss, whine, cry, or whatever needs to be done at a paticular time. the people here at Lit are great.They're always here when you need them.
Love to you and Jesse

 

[BgMma]

You are too kind. This means so much to me!