For the first time in my life, I am scared

BgMma

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Jul 29, 2002
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In all seriousness, my son may be autistic. I am trying so hard to hold it together, but as the day is nearing for his tests, I am having difficulty being the hardass I usually am in RL.
There are so many things that I don't know. Everyone who has this is different so there are so many different things that could be blended together to make my child.
His appoinment is on the 31st and I am more and more nervous. I don't know what is going to happen until we get there and even if I don't want these tests done, I have to do for the well being of my child.
Normally I just go on with my life and deal with it as it comes, but I have had three months to dwell on this and I am scared.
I am scared for Jesse. I don't know how these tests are going to affect him, how long it's going to take, anything.
I just had to get that off my chest. It's so mcuh easier like this than talking face to face. I don't like having fear, but here it is and I have to look at it.
For those of you who pray, could you do so for my boy? I don't care if he is autistic, because I will always love him, but pray that he does well through all he must do.
Thanks, Teresa
 
just remember there are many different levels of autism (if that is what it is). How old is he? Does he talk? Give eye contact?

Always get a second opinion from a respected neurologist before believing the first thing you hear.
 
Teresa,
You can have whatever you need from me. Prayers, hugs, positive thoughts and hand holding.:rose:

jl:heart:
 
The neurologist is who we are going to see first.

He is three and a half. He barely talks, he doesn't like too much eye contact, and he seems to have OCD. Like RainMan, you know? He has to do the same things over and over again, no matter the consequences or the situation.

He got outside one day and ran down the middle of the street because he liked the yellow line. He didn't even act like the cars were there. Can you imagine my terror as I ran him down, hoping to God that no one hits him?

This has been very trying.

Thanks for the good words, everyone
 
BgMma99 said:
The neurologist is who we are going to see first.

He is three and a half. He barely talks, he doesn't like too much eye contact, and he seems to have OCD. Like RainMan, you know? He has to do the same things over and over again, no matter the consequences or the situation.

He got outside one day and ran down the middle of the street because he liked the yellow line. He didn't even act like the cars were there. Can you imagine my terror as I ran him down, hoping to God that no one hits him?
my prayers are with you

...and do remember to get two opinions, it can make a great difference as far as treatment goes. If it is NOT autism, but something like AS (Aspurgers Syndrome) then early intervention gives you the greatest advantage.
 
No one even mentioned AS.

This is going to be harder than I thought. Thanks for you help, JB. It means a lot. From everyone else, too.

I feel like such a dick by even posting this. I told glorfindale that I hate talking about my feelings, but I have to get this out. It's like a big black flag over my head. The situation, not the illness
 
I'm sorry to hear that you are going through this trying time. As you said though, no matter what the docs say you will love your child just the same, he will still be the same little boy he is now.

You have lots of support here.

(((hugs)))
 
never feel bad about posting. So many people out here have disabled children in such varied circumstances that you can get some valid information...

...and being informed is the most important thing you can do for yourself.
 
Hanns_Schmidt said:
Does he dribble?

Thank you for being an asshole. No, he does not dribble. Autistics are not retarded, therefore, they usually do not drool/

This is why I hate talking about anything.
 
I have an autistic child, my oldest son. I don't generally give out too much info about him here on the boards but my PM box is open to you anytime. If I can be of help, please let me know.

Hugs.
Trish
 
Lord knows I can use all the help I can get.

Thank you, hon.
 
Hanns, despite what you may think, this isn't a joke post. If you must fuck with someone, do it else where, because I don't the the patience to deal with your ignorant shit.

Now, can you find your enema bag? You sound backed up.
 
Sometimes, children are also diagnosed with autism when the problem is something else. My best friend's sister's son wouldn't speak and was very socially withdrawn. 3 doctor's diagnosed him with a midl form of autism and as it turned out, he was experiencing a somewhat rare allergy to certain foods (wheat and dairy). Once his diet changed, he began to pick up language at an amazing rate.

Good luck with the tests and best wishes.
 
zipman7 said:
Sometimes, children are also diagnosed with autism when the problem is something else. My best friend's sister's son wouldn't speak and was very socially withdrawn. 3 doctor's diagnosed him with a midl form of autism and as it turned out, he was experiencing a somewhat rare allergy to certain foods (wheat and dairy). Once his diet changed, he began to pick up language at an amazing rate.

Good luck with the tests and best wishes.

Thanks honey. I will make sure to bring that up when at the appointment. I wasn't aware of that, either.
 
Well, Hanns, if he is like me, he will need years of therapy. I don't go because I don't trust people who try to get in my head. Hmmmmm.........
 
Hanns_Schmidt said:
He'll need to eat with a bib

So will you by the time I'm finished with you.

Go back to the hole from whence you crawled from will ya.
 
Having taught special education for a number of years, I can not give advice, too many cooks spoil everything, but I can give you all my love and affection. This will be trying, but be strong there are many in the same boat. The eduation systems are much better able to serve than they were 30 years ago.

:rose: :kiss:
 
Thanks for your kinds word, Bindii. It's going to be a serious adjustment, but we can make it.:D
 
bknight2602 said:
Having taught special education for a number of years, I can not give advice, too many cooks spoil everything, but I can give you all my love and affection. This will be trying, but be strong there are many in the same boat. The eduation systems are much better able to serve than they were 30 years ago.

:rose: :kiss:

Thanks, darling. You do know how much you mean to me, right?
 
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