Trinique_Fire
Daddi's Princess
- Joined
- Dec 15, 2004
- Posts
- 10,550
I didn't check with Luna, but I just don't have the energy or desire right now to respond to individual PM's, so I hope it's okay with her that I'm sharing all the following information here on the AH.
All my prenatal care has been transferred to Johns Hopkins in Baltimore because it was discovered via sonogram and MRI at Children's in DC that the baby has a Morgagni hernia. Her liver is in her chest cavity, partially protruding from her body and partially compressing her heart and lung. (She only has one -- very underdeveloped -- as the other never had a chance to grow and develop). She also has phocomelia of her arms (no forearms, and limited to no functionality of her hands), and one of her hands developed backwards. The biggest concerns at the moment are pulmonary hypoplasia and hypertension and whether or not she'll be able to survive outside the womb. No one will know for SURE how underdeveloped her lungs are until she's born, but there are a number of different things they'll try to help her breathe. Intubation, pumping air into her lungs (though this is risky because underdeveloped lungs are stiff and can pop), and ECMO, which is a lung/bypass machine. There's a couple other methods they'll try as well, but I have to say that neither the doctors nor specialists feel very hopeful. Morgagni hernias (on the right side of the body) only happen in about 2% of all cases like this, and they are extremely life threatening, moreso than hernias on the left side of the body.
I am trying to stay hopeful, but it's very hard when all everyone keeps reminding me to do is prepare for the worst. I have another appointment on Friday in Baltimore, at which point I'll meet with a pediatric surgeon and high risk doctor, and I'll receive my scheduled date for delivery. There will not be a C-section, since vaginal delivery will help get rid of some of the fluid that's making it difficult for Baby J to swallow and breathe.
Anyway, that's the news. Sorry I started a whole new thread for it, but I had several PM's and I'm too fucking exhausted to answer individually or to find my old thread.
Peace.
All my prenatal care has been transferred to Johns Hopkins in Baltimore because it was discovered via sonogram and MRI at Children's in DC that the baby has a Morgagni hernia. Her liver is in her chest cavity, partially protruding from her body and partially compressing her heart and lung. (She only has one -- very underdeveloped -- as the other never had a chance to grow and develop). She also has phocomelia of her arms (no forearms, and limited to no functionality of her hands), and one of her hands developed backwards. The biggest concerns at the moment are pulmonary hypoplasia and hypertension and whether or not she'll be able to survive outside the womb. No one will know for SURE how underdeveloped her lungs are until she's born, but there are a number of different things they'll try to help her breathe. Intubation, pumping air into her lungs (though this is risky because underdeveloped lungs are stiff and can pop), and ECMO, which is a lung/bypass machine. There's a couple other methods they'll try as well, but I have to say that neither the doctors nor specialists feel very hopeful. Morgagni hernias (on the right side of the body) only happen in about 2% of all cases like this, and they are extremely life threatening, moreso than hernias on the left side of the body.
I am trying to stay hopeful, but it's very hard when all everyone keeps reminding me to do is prepare for the worst. I have another appointment on Friday in Baltimore, at which point I'll meet with a pediatric surgeon and high risk doctor, and I'll receive my scheduled date for delivery. There will not be a C-section, since vaginal delivery will help get rid of some of the fluid that's making it difficult for Baby J to swallow and breathe.
Anyway, that's the news. Sorry I started a whole new thread for it, but I had several PM's and I'm too fucking exhausted to answer individually or to find my old thread.
Peace.
