When faced with a disease you do not understand.

We are waiting for your DVD version of it.:rolleyes:




Honestly, I am in shock. As is True to my nature, I will somehow come to accept this.........thing/lupus..........or wtf ever folks want to call it? I mean, what choice does a person have in this case? A person has to continue living somehow........What else do we know? I gotta keep living....I am not even remotely close to retirement.

Quoted, just so you can remember you said it.
 
Even so, fighting a disease suck as Lupus is mostly knowledge of it, NOT that internet shit you so solemly base your dumbass knowledge on.

I comprehend I have a disease i do not know how to combat. It is NOT whining if you want answers on how to combat something you cannot see.

Sorry to hear of the diagnosis, Johnny Ray, I truly am, but if you are of the opinion that there is no sound medical knowledge on the internet, you are doing yourself a horrible disservice.

Many of the answers you seek are readily available to you. You've already got some reasonably optimistic anecdotal information from folks here, but if you want the most reliable information available, you are going to have to dig into some online medical journals and research studies. Google IS your friend.

Good luck.
 
you can fight and scream and yell until the cows come home, but that won't fix what is wrong. get it out, then get some sleep.
 
Sorry to hear of the diagnosis, Johnny Ray, I truly am, but if you are of the opinion that there is no sound medical knowledge on the internet, you are doing yourself a horrible disservice.

Many of the answers you seek are readily available to you. You've already got some reasonably optimistic anecdotal information from folks here, but if you want the most reliable information available, you are going to have to dig into some online medical journals and research studies. Google IS your friend.

Good luck.

Thank you. I am open to any links on the subject. I do have the input of different physicians. They were all pretty much correct and direct. I am trying to find, or learn, how to live with this. It means drugs........I do not like that.
 
Fine. That has nothing to do with the topic. Nor our PM.:rolleyes:

Let me know when you understand wtf Lupus is.

And you rant about other people [apparently] not being able to comprehend what is written here!
Did you completely miss the post where I said my sis-in-law has been living with lupus for years?
:rolleyes:
 
And you rant about other people [apparently] not being able to comprehend what is written here!
Did you completely miss the post where I said my sis-in-law has been living with lupus for years?
:rolleyes:

I read that post. Not the same as the other topic you were speaking to me about earlier. What part of those 2 different topics do you not understand? Neither are related. I have seen you separate 2 separate topics in the same thread, rather than run them together. I know you can do it.

If you have followed any of my posting history, you already know I am best friends with a male lupus victim and his mother (also lupus victim). Now I have it. The more knowledge, the better.

Asking for information and experience to combat Lupus is entirely different than whinning about it and making excuses. I want to fight it; not sit on my ass and collect a gov't check for a disease the feds are not going to pay for.
 
WTF are you talking about dumbass? UNLIKE YOU, I am not a lier. I just found out about my Lupas TODAY! WTF does a 5 letter name have to do with this?

Are you real or not asshole? I know you are upset I found a way to post this thread after you or one of your "friends" blocked me. Not the first time that has happened. Basically, you are a wimpy pussy. And not the first time I have said that is it?

I think you're going to need a doctor's note on this one.
 
Please check my posts later right after I am diagnosed with a "life ending (read: altering) disease" and I rush to make a thread on Lit about it.

If you need attention post a happy-seeking thread. Those work better.


Also, I'm with bg, if you run Laurel off I will have to find some bamboo shards to shove under your fingernails.
 
WTF planet are you on?

You are asking ME if I have have a comprehension problem after all the BS I been through this month with several doctor, clinics, hospitals, and several folders full of blood, skin, and x-ray tests?:confused:







Not a joke. You appear to be the only one in my thread who understands what lupus means.

Thanks a lot.
 
I think you're going to need a doctor's note on this one.

"Dear GB,

This is JRW's physician. Humor him. He was very upset at the first of this news about Lupus. He sought 2nd and 3rd opinions. Johnny is angry and this is the typical type anger of any normal person responds with, when confronted with news of this type. It does not excuse his behavior of course. He is still mostly in denial, but this is good. Eventually, he will use this anger to learn how to live with Lupus.

Also, he will go nuts at times and do some astonishingly crazy things. At least for a few months or so until he truly accepts his disposition. He is now entertaining thoughts of sky diving, bungee jumping, bugging NASA about a trip to the moon, and demolition derby races. He is regressing in some ways.Typical guy stuff."


Sincerely, JRW's Doctor.

PS: Someone tell Mr. Wilson to stop flirting with my receptionist and to stop fondling the nurses.
 
Didn't your Dr talk to you about any of this?
Yes, 3 good ones. I really did not want to talk to my regular doctor when she confronted me. Nothing against her, she knows. I simply did not want to hear it. In fact, I stopped her in mid sentence by holding my hand up and walking away. I did not want to hear whatever she was saying at that moment. Not at all like me in personal dealings with others. I needed some time alone to absorb it all and try to make sense of it. After several days, I finally decided to start dealing with the reality of it. Instead of just wishing it away.

It has taken several weeks to stop being angry at God. Many things about my life are going to change. I want to prepare myself for whatever is coming. I am not a weak person and I will not except anything less than 100% effort from myself in combating this Lupus.

My best friend has Lupus as well as his mother. I have witnessed the changes in him. His mother has lived with it for about 20 yrs. In fact, I always thought she was kind of looney, but finally sitting down and talking to her on how to deal with this......convinced me she is one hell of an inspiration and an excellent, positive, realistic source of support. My best friend was diagnosed with it a few years ago and was the first to tell me he suspected I have it before I went to have some tests run. Actually, it takes a lot of tests for diagnosis to confirm it is indeed Lupus and not some other similar, degenerating disease.

I have been taking some courses on Alcohol/Drug Counseling twice a week. I may start teaching DWI classes at night, part time. But that is not really for the money. I really want to try doing it. If I eventually feel, at some point in the next several years, that I can no longer consistently do my current job, then at least I have some sort of back up plan for employment.
 
You said male Lupus is rare yet your own best friend has it? What the fuck are the odds on that? Oh yeah, you're a pathetic liar.
 
I blocked your thread.

Rory has no authority around here, other than to make you act like a fool.

I thought only queers got lupus...
 
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