When do you say... 'Enough!'

neonlyte

Bailing Out
Joined
Apr 17, 2004
Posts
8,009
We discussed Morals here recently, Zoot raised the subject if memory serves. I thought this issue deserved a hearing.

There are certain individuals whom through no fault of their own don't fit into the model of society the rest of us live by, I'm not talking about criminals or the insane but a class of people who are social misfits scarcely capable of caring for themselves but not ill in the sense of requiring hospitalization.

In the UK, we deal with this individuals by placing the 'in the community'. We have a programme run by the individual health trusts called 'Care in the Community', it is supposed to be a way of accommodating these misfits in a community environment.

Local to my home, one of these 'institutions' masquerading as a 'home' was closed recently. It was one of four purpose built units each housing ten 'clients' - as they are called in deference to naming them 'patients' or 'inmates' or even 'prisoners'. The unit was closed because standards had dropped below an acceptable level as judged by a committee established to independently vet the living conditions of the clients, they received a six month warning, the situation didn't improve and the clients, many of whom had lived together for a period of years - ten years in some cases - were seperated and sent to other homes across the UK.

These clients suffer a range of disabilities, most are mentally handicapped but able to provide some care for themselves under supervision. Some don't understand socially accepted norms of behaviour and behave oddly, though only in relation to the 'wider community', they don't see themselves as behaving oddly.

My daughter works for the local mental health trust and is charged with improving the living experience of clients, service users and carers. She was asked to visit the three remaining units and produce a report on how the living experince might be improved in the homes. Bearing in mind these homes are not mental institutions by the common definition of the term and she has worked with clients in many of that type of institution, she was absolutely shocked by what she found - so shocked that it took her the best part of a week to tell us about her visit.

In the first home, she was greated by a man at the gate who was waiting for a bus. The gate was locked to prevent him getting out. The supervisor told her he stands there all day every day waiting for the bus. The bus comes about once a month to take them to the local town to walk round the shops. The supervisor, understandably nervous about having another 'outsider' vist them for the purpose of producing a report, took her to one side before entering the house to apologise for one of the clients who had a habit of removing his clothes.

She assumed this to be something that happened occassionally, she didn't expect to find him stark naked inside the house. He followed my daughter and the supervisor from room to room, occassionally playing with himself and laughing. She was shown this clients room. She described it like a Monks cell, stripped bare like the man himself, not even a sheet or blankets on his mattress and the room contained nothing that might personalise it in anyway. Not one picture, or book or photograph or ornament of any kind. The man had lived there for ten years. The three staff in this unit were sat watching the television, the clients sat in chairs, some watching television, some looking a tattered and torn magazines.

None of them had any personal possessions, they were not in fact living a life at all. They were marginalised, institutionalised in everything except name, a detrious of a society that prefered them to be out of sight and out of mind.
The other two homes were scarcely any better, the staff in all three clearly demoralised, untrained, unsupervised... and this is what we call care in the community.

Despite all of this, there is a community between clients. These individuals rarely have family visitors, the other residents and the carers are their 'family', they share their life together.

My daughters is terribly torn over what to do. The first home was closed because they couldn't keep one of the clients dressed, quite how this naked man was overlooked in another of the homes is something of a mystery. She questioned the supervisor about the naked man, and it appears that no attempt has been made to get him to wear clothes, she formed the impression it was easier for the staff to leave him naked than to encourage him to dress. One of the mandates being introduced is 'free access' for clients, in other words, doors and gates are to be left unlocked. It's the wisdom of the 'Masters', who've no idea what goes on, to decree that labelling something as 'Care in the Community' means as much to clients as it does to the politicians.

What happens to the man waiting for the bus? And the naked man when he wanders into the street. She feels duty bound to report what she has seen knowing all hell will break loose on the homes and the family of clients will be seperated into different homes across the country losing what little dignity they have been able to build in the fragile relationships they have constructed between themselves.

She spent the week reading up on the policy background to these homes discovering a clear intention to make the case that the service should be handed over to private contractors to run on behlf of the health trust. In other words if you paint the situation as beyond redemption, you can wash your hands of the problem. Push the marginalised into a darker corner where no light will ever shine.
 
There are certain individuals whom through no fault of their own don't fit into the model of society the rest of us live by, I'm not talking about criminals or the insane but a class of people who are social misfits scarcely capable of caring for themselves but not ill in the sense of requiring hospitalization.


In the US they tend to post on Literotica, in the AH no less, and discuss educational solutions on teaching English in a clear and concise style.
 
neonlyte said:
She spent the week reading up on the policy background to these homes discovering a clear intention to make the case that the service should be handed over to private contractors to run on behlf of the health trust. In other words if you paint the situation as beyond redemption, you can wash your hands of the problem. Push the marginalised into a darker corner where no light will ever shine.

I know. They did the same thing here in Ontario when they had a neo-con premier (governor) here. Succeeded to. Didn't save any money, made some people rich. And we now have a big homeless problem.

But the people that make these decisions really don't care for several reasons.

First is that money is now more important than people. Money can be measured, suffering can't. Things that can't be measured don't exist thereby.

Another is the religious nature of our society. We're religious about economics. Good people study hard, get the right jobs, work within the rules and rise to the top. Sinners do not. No religious society really cares much about the sinners in it.

And there's the old, entirely human fear of 'The Other'. People with mental and physical handicaps are 'The Other'. And it's difficult for 'normal' people to feel much empathy or even understanding for them.

Shrugs. Just humans being humans.
 
A typical government run solution.

Find a group of people who need help. Pretend to furnish them help, but in such a fashion that the needed help never quite arrives. Hire people to run the program at exhorbitent salaries, while paying the people who are supposed to do the actual work such small wages that only incompetents will stay in the job. Run the program until someone blows the whistle. Then hire another group of highly paid people to suggest a solution to the old solution. Repeat as necessary.
 
Tough, too. Untrained staff, and even professionals who don't interact with the residents on a regular basis, can't have an ironclad sense of what they will and won't do. I imagine there's fear of a lawsuit, too, factoring into the bare rooms. No one wants to be the one who gave someone a picture frame whose glass he injured himself with, or a book he brained someone with, or a clock from which the batteries were extracted and eaten. It's not that people are all that likely to do it, but the nature of institutions (especially legally responsible ones) is to play it safe, and if the question is "are you absolutely sure that this couldn't possibly injure someone eventually," the answer is hardly ever yes for any person, disabled or not.

'Tis a muddle. It's so damned hard to know what's safe and what isn't. I'm not even sure how I feel about the naked man, to be honest. If he's not bothering anyone in his own home, it's hard to call him wholly wrong - and yet I do also see that it makes it harder for him if he's called to fit in when placed in any other setting.

I think that's really why people are anxious and nervous, Rob. They don't know. They want to be reasonable, most of them, but they have no idea what the right thing to do is.

Shanglan
 
My cousin is one of these people, though at the high end functioning. He can hold a job of some limited nature but could not drive himself there. He lives in what we refer to as a "group home" here. People like him are placed together and overseen. I believe this home is government run but somewhat autonomous. I know another cousin of mine works in overseeing services to these types of homes.

I understand your friends concern about breaking up a home but if what she observed is accurately reported, these people could be far higher functioning and happier with the right oversight. I believe she is doing the right thing by reporting the unnacceptable conditions. :rose:
 
BlackShanglan said:
I think that's really why people are anxious and nervous, Rob. They don't know. They want to be reasonable, most of them, but they have no idea what the right thing to do is.

Shanglan

I live in such a situation and I don't know what to do. ;)

But while people are muddling around the ones who do know what they want, to push the poor and sick off the edge of the world are acting.

Sigh. I'll be writing for an hour if I get started on all the 'interesting' things that have happened here where I live.
 
Aye. It's a good point. People of honest goodwill care whether they're right or not, and they really can't know, most of the time. So they hesitate. People who just want a cheap answer know exactly what they're after and go for it with energy.

When I was young, the mental institution serving the large city near us shut down. Perhaps it was right to shut it. In my mother's youth, she heard young men talking about sneaking into the grounds at night to have sex with the female patients, and the building itself was decrepit - the worst of institutionalization. But in the year after it closed, the number of people sleeping rough on the city's streets tripled.

No doubt it saved some money.
 
What would happen if you did say "enough?" What then? What are the alternatives? Larger institutions? Those are probably even more horrifying. I have dealt, not with younger adults, but older ones who have, sadly, become equally dsiabled at the end of their lives. No amount of love or caring is going to make them "normal" -- at least in most cases. And if there was a cure, probably the people living with them every day, trying to cope with their disabilities, would be the first to welcome it. It's easy to walk into a situation like that and be shocked, but don't assume that there is an obvious way to make things better.
 
WRJames said:
What would happen if you did say "enough?" What then? What are the alternatives? Larger institutions? Those are probably even more horrifying. I have dealt, not with younger adults, but older ones who have, sadly, become equally dsiabled at the end of their lives. No amount of love or caring is going to make them "normal" -- at least in most cases. And if there was a cure, probably the people living with them every day, trying to cope with their disabilities, would be the first to welcome it. It's easy to walk into a situation like that and be shocked, but don't assume that there is an obvious way to make things better.
I don't think anyone believes they can be made 'normal', least of all my daughter. What she does believe is that a degree of dignity, coupled with respect, be applied to the condition in which they find themselves. She works with severely mentally disabled people on a daily basis largely operating from an 'arts' perspective to bring activity - low key arts therapy, colour - decoration of spaces involving clients, sensation - through music, film and gardens for the disabled. Part of the background cultural experience of these institutions is their environment is often so daunting it demotivates clients, staff and visitors. Most of mental hospitals in the UK are for short stay clients who have some perspective of recovery, improving their living environment and adding low key functionality to their lives can be beneficial for some - but not all.

The homes she visited were for long term clients who had no prospect of recovery. These places were their permanent homes and her shock was at finding them so de-personalised. Whilst the seriously impared cannot be made well they can be given some dignity in the way they spend their days. She felt these people had been 'written off' with a clear intention to remove them one step further from the care chain by privatising the service. Maybe that is to pre-judge the service a private contractor might provide, experience (in the UK) tends to suggest things wouldn't improve without a major injection of funding, training and service provision. What particularly annoyed her is the funding exists within 'the system' to inject resources into these homes but the infrastructure is not in place to help the home supervisors prepare proposals, apply for funds and introduce programs.

Her administrative board has asked her to prepare proposals ahead of a review of the future of these homes in six months time, a time frame too short to make any difference to these clients lives or the way the homes are presented to a review panel. Her proposal would carry cost implications that might persuade the review body to proceed with privitization rather than adopt a 'best practice' proceedure for the future of these clients.
 
My sympathies to your daughter, Neon, for having to deal with such a difficult situation - and I admire her for her work. She's really chosen to do something special with her life.

"Dignity" is such a tough one, though. Not trying to quibble, really - just more, I suppose, expressing my own unhappiness at the painful difficulties of the situation. Some of our ideas of dignity relate to the physical actions and circumstances of a person's life, but others to ideas like independence and freedom. When you may not be able to grant both at once - like the man who wants to take off all of his clothes in what is, as best as it can be, his own home, and yet who clearly doesn't understand the effect this has on other people - it's difficult to know which way to go. Do I try to maximize his independence and ability to make his own choices, however unsettling they might be to me, or do I try to maximize his ability to live in the way that most of us would call dignified in the material sense - clad and capable of being seen by others as a socially functioning person? It's so difficult to come up with a good answer, and that's before we add in the problem of never really knowing exactly where another person is in terms of mental functionality, or what he might be capable of.

I think at the bottom of it, too, there's a sorrow for the things we can't fix. What we'd really like is to see the poor man happy, functioning, and able to live as an independent person. Whatever way we choose to work with his disability, it's always going to feel painful in some way, because it's always going to involve reminders that he doesn't get the things that others get from life. We can maximize what he can have, and your daughter is doing great work in trying to do that. Bless her for that.
 
Back
Top