What is it....

[graceanne]

...about not feeling good that makes me miss this place? lol I have a couple of herniated discs in my back, so I'm jumping through the hoops (not literally, of course since my legs go numb if I'm on my feet for more than a couple of minutes) to get a lumbar fusion. I'm super annoyed, as I'll be down for 4-6 weeks, recovering.

Anyway, how is every one? My pain meds are working but now I wanna get up and clean something and then K will yell at me, so help me by updating me on everyone's lives.

 

[13Fantasies]

I know what you mean about back pain. Had it chronically since I was 12. Glad meds work for you though.

 

[seela]

...about not feeling good that makes me miss this place? lol I have a couple of herniated discs in my back, so I'm jumping through the hoops (not literally, of course since my legs go numb if I'm on my feet for more than a couple of minutes) to get a lumbar fusion. I'm super annoyed, as I'll be down for 4-6 weeks, recovering.

Anyway, how is every one? My pain meds are working but now I wanna get up and clean something and then K will yell at me, so help me by updating me on everyone's lives.

Hey, really long time no see!

I’m sorry you’re feeling bad and have go jump through hoops to get the treatment you need, but it’s good to hear the pain meds are working.

Not too many old faces left here, but maybe your post will encourage them to come out of hiding as well.

 

[graceanne]

Ditto. I have severe scoliosis (54° curve) and akylosing spondylitis. lol I also have Crohn's disease so I'm not allowed NSAIDs for any reason.

I know what you mean about back pain. Had it chronically since I was 12. Glad meds work for you though.

 

[graceanne]

Hey, really long time no see!

I’m sorry you’re feeling bad and have go jump through hoops to get the treatment you need, but it’s good to hear the pain meds are working.

Not too many old faces left here, but maybe your post will encourage them to come out of hiding as well.

We can only hope. How are you?

 

[BiBunny]

Ditto. I have severe scoliosis (54° curve) and akylosing spondylitis. lol I also have Crohn's disease so I'm not allowed NSAIDs for any reason.

Bless you. I'm sorry you're in so much pain, but I'm glad the meds are working. My old doctor (who just retired) and I are relatively sure that I have ankylosing spondylitis, too, but I can't afford the imaging to prove it. And the new clinic I'm going to, when I mentioned it to the nurse practitioner there, she told me the pain was because I'm fat.

Anyway, everything's chugging along here. Hope you can get the treatment you need soon. Back pain is no joke, but keeping my fingers crossed that the meds continue working!

Good to see you around again!

 

[graceanne]

Bless you. I'm sorry you're in so much pain, but I'm glad the meds are working. My old doctor (who just retired) and I are relatively sure that I have ankylosing spondylitis, too, but I can't afford the imaging to prove it. And the new clinic I'm going to, when I mentioned it to the nurse practitioner there, she told me the pain was because I'm fat.

Anyway, everything's chugging along here. Hope you can get the treatment you need soon. Back pain is no joke, but keeping my fingers crossed that the meds continue working!

Good to see you around again!

Assholes. I'm combining Vicodin with Edibles. It doesn't get rid of the pain but it helps me sleep. I don't take anything during the day because I got shit to do and I'm already stupid enough without adding in narcotics. We're talking about having me tested for ehler danlos, but I'm not sure I want to do genetic testing. I'm probably being paranoid but I worry about going in a government database as a Jew. Plus, the main thing they do for EDS is NSAIDs and I can't take NSAIDs.

 

[seela]

We can only hope. How are you?

I’m good! Currently on vacation in Slovakia, so yeah, extra good right now.

I’ve talked with a doc about Ehler Danlos myself, but I’ve decided not to pursue down that road. If I have it, a diagnosis, at the moment anyway, would not change anything. I’ve developed pretty good coping mechanisms with the joint pains and hypermobility, which are the biggest issues for me, so currently I don’t need any extra medical help that would only come with a proper diagnosis.

I also have some other classic Ehler Danlos symptoms and my dad and sister are hypermobile as well, so, yeah. I don’t really need the test to know there’s something in the in the genes.

I really hope you can get the help you need, joint issues are so not fun.

 

[BiBunny]

I, too, have hypermobile joints! I have some really dumb injury stories, lol.

 

[seela]

We should start a gang!

 

[graceanne]

There are so many things I do that I didn't even realize was 'weird' or I had an explanation. Like, for instance, I am almost always sitting cross cross applesauce (can you tell I've done daycare for 20+ years?), but I figured it's because I'm so short my feet don't touch the ground. But my scoliosis is EDS, so are my fibroids and my retinal detachments. And my adhesive and sweat allergy! Also, I didn't know it's not normal to be able to move your trachea! Rectal prolapse, umbilical hernias and microcytic anemia are EDS things. The weirdest? Heterochromia (different colored eyes) is an EDS things.

 

[graceanne]

I, too, have hypermobile joints! I have some really dumb injury stories, lol.

I'm currently recovering from a sprained knee. I sprained it standing up from the couch. I was in a boot for almost 2 months last year from a really bad Achilles tendon sprain that I got walking to my car. Not running, just walking. Freaking ridiculous. lol

 

[ericalauren]

Bless you. I'm sorry you're in so much pain, but I'm glad the meds are working. My old doctor (who just retired) and I are relatively sure that I have ankylosing spondylitis, too, but I can't afford the imaging to prove it. And the new clinic I'm going to, when I mentioned it to the nurse practitioner there, she told me the pain was because I'm fat.

Anyway, everything's chugging along here. Hope you can get the treatment you need soon. Back pain is no joke, but keeping my fingers crossed that the meds continue working!

Good to see you around again!

I’m sorry that the NP told you that your pain is caused by your weight. That’s not right. People tell me that all the fucking time. I respond by screaming at them that I didn’t become fat until after I became disabled.

 

[seela]

I'm currently recovering from a sprained knee. I sprained it standing up from the couch. I was in a boot for almost 2 months last year from a really bad Achilles tendon sprain that I got walking to my car. Not running, just walking. Freaking ridiculous. lol

Hey, I hurt my ankle when I stood up from the floor - where I was sitting criss cross applesauce, which is also my preferred sitting position. It took ages for it to heal.

I roll my ankles all the time and I have to be quite selective with my shoes. So many have rounded edges or the sole is too soft, those are a death trap for me! I like wearing heels, because they usually force me to concentrate a bit more on my walking, which leads to fewer hurty ankles.

My worst were the shoulders, which would dislocate all the time. It happened so often that eventually I taught my friends to grab onto my arm and then I’d pull against them and pop the shoulder in place myself. My gym teacher nearly passed out of disgust when she had to do that once. I’ve had them operated and they’re anchored in place now so they’re not so much of a problem anymore. Also had my wrist operated. The rest of the joints I mostly seem to manage with.

Off to find breakfast now!

 

[BiBunny]

I, too, prefer criss cross applesauce, at least until my feet go to sleep, lol. And when I sit in chairs, I almost always curl one leg under me.

And I once dislocated a shoulder falling off a horse and was told by an orthopedic surgeon I couldn't have possibly dislocated it by falling on it. I was like, how the fuck else do people dislocate joints, then? (I know there are other ways, but he was remarkably stupid.)

That shoulder now dislocates at the slightest provocation, too.