polymyositis

EJFan

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Joined
Jan 19, 2004
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i think i have the spelled correctly.

anyone have any experience with it? i know the cursory stuff but was wondering if anyone would share a personal experience.

my father was diagnosed a couple of years ago and has been in treatment & on meds ever since. so far, there's no real sign of it going away... it seems more like something he'll live with and manage as best he can.

my concern is that, like most fathers, he doesn't share much about what he's going through. he does his daily thing... went back to work on a full schedule quite a while ago and is doing what he can but i know he's not up to par and it's bothering him that he has limitations (even though he rarely shows it).

can anyone suggest what to do? what to prepare for? what to expect? any insight would be greatly appreciated.
 
i'm sorry to hear about that, i really don't have any advice because i have never dealt with that. but i do hope that you can get him to take it easy and maybe open up to you a little.
 
EJFan said:
i think i have the spelled correctly.

anyone have any experience with it? i know the cursory stuff but was wondering if anyone would share a personal experience.

my father was diagnosed a couple of years ago and has been in treatment & on meds ever since. so far, there's no real sign of it going away... it seems more like something he'll live with and manage as best he can.

my concern is that, like most fathers, he doesn't share much about what he's going through. he does his daily thing... went back to work on a full schedule quite a while ago and is doing what he can but i know he's not up to par and it's bothering him that he has limitations (even though he rarely shows it).

can anyone suggest what to do? what to prepare for? what to expect? any insight would be greatly appreciated.

Hi EJ, nice sig. line ;)

Sorry to hear about your father. Here's a link for you. Maybe this'll help you out.

http://www.medicinenet.com/polymyositis/article.htm
 
i appreciate all the information.

anyone have experience with this... either as a health care professional, relative, patient, etc.?
 
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