Peyronie's disease

[temp256]

This is rather humiliating, being a girl with Peyronie's disease, but I need to hear other peoples' advice.

I've had the problem for years, but because of incompetent doctors I was only diagnosed a year or so ago. Simply put; it hurts. A lot. Full erections are quite painful, but fortunately that doesn't happen as much anymore. Masturbating manually leaves me sore for days, so I use a vibrator exclusively. Partial erections feel very tight and constricted. It's gotten so bad condoms won't stay on, because it has a conical taper.

I did find a competent urologist for treatment, but I had to stop because I couldn't take it anymore. The treatment is a series of injections directly into the corpora cavernosa. It was torture. Even with local anaesthetic and painkillers. I nearly cried in front of my mother in the elevator after the first time. It left me with an enormous black bruise lasting two weeks. I lasted through three or four of these treatments before I decided it wasn't worth it.

What can I do? I'm very tempted to rush and get it chopped off, but I don't want this problem to cloud my judgment of the most important decision in my life.

 

[SumLightCat]

Sorry, I'm confused ... isn't this a disease that affects males?

 

[temp256]

I guess I should have been more clear. I'm a transwoman.

 

[SumLightCat]

Ah ... I understand. I'm very sorry you're in such a situation ... I honestly don't know what to say. From my limited knowledge of the disease, the prognosis is statistically not too good.

I hope you find a solution that works for you.

 

[Shadowann2]

Cut and Paste from Wiki...

Self-administered manual stretching techniques, as well as a number of devices which exert gentle longitudinal forces on the plaque, are currently being studied in clinical trials. Vacuum therapy devices (or penis pumps), which have traditionally been used to treat erectile dysfunction, are currently being prescribed to help correct the curvature of the penis associated with Peyronie's.[citation needed]
Doctors are starting to look into less intrusive forms of therapy as an alternative to surgery, which is becoming increasingly unpopular amongst both doctors and patients. Due to the very intrusive nature of penile curvature correction surgery, and the arguably scarce results that it provides at a very high economical, emotional, and physical cost, patient insatisfaction post surgery is very high. Most patients were unhappy with the results of the intervention due mostly to the penile shortening that happens after the surgery. As the scar retracts, the penis is pulled deeper into the body, eventually resulting in penile shortening. This was recorded in nearly 100% of the cases studied.[17]
Although there is no cure for Peyronie's Disease, several clinical studies such as the one mentioned above point to penis extenders as the best treatment to correct curvature, or at the very least to impede the curvature from getting worse. According to Doctor Gontero, the leading Doctor of the above mentioned study which was published in the Journal of Sexual Medicine in 2009, "Overall results were self-reported as "acceptable", making this minimally invasive treatment modality a potential new treatment option in selected Peyronie's disease patients."
Similarly, after conducting two case studies, Urologist Wendy Hum of the British Royal Infirmary, came to the conclusion, "As patient and doctor discuss the possible treatment options, it is extremely important to exhaustively inform the patient that the treatment with the Andropenis (a brand of penile extender) has to be considered an overall effective and viable treatment." [18] Several other studies exist reaffirming these types of results.

It also suggests therapy to deal with the psychological and emotional issues that dealing with this disease can cause. It sounds like you are really having a hard time with this (who wouldn't?!), and a therapist that you can talk to and trust could help you deal with your feelings and help you decide on a course of action that is right for you.