Does anyone here have experience with hepatitis C?

[klingle]

Maybe your friend can start cooking meth and change their name to Heisenberg. I heard that works.

I don't get this.

 

[klingle]

I don't get this.

Nevermind. Mad Men reference. I guess it took KRCummings a long time to think of that.

 

[Disgustipated]

You're using a friend's disease to get yourself attention on the GB. The underlined part was the giveaway.

New low.

New low? For her? Not possible.

 

[KRCummings]

New low? For her? Not possible.

She'd have to murder children to find a new low and even then I'm not sure.

 

[Disgustipated]

She'd have to murder children to find a new low and even then I'm not sure.

All would be forgiven if she gave her hep c to blob and Odad.

 

[KRCummings]

All would be forgiven if she gave her hep c to blob and Odad.

Make the world a better place.

 

[klingle]

Make the world a better place.

I hate you with every fibre of my being.

 

[Noor]

A friend's mom died of Hep C when she was in her 40's. She wasn't wasting, she was slowing down and under medical care. She was resting a lot but still functioning. One evening she was lay down to rest and she was gone within minutes. No slow shut down just bam. She got it from a transfusion about 15 yrs. prior, she did okay for many years and then she got sicker. She had maybe 6 months from when she got sicker to when she died.

 

[Typo Fu Master]

Here's the situation. Someone very dear to me has had this disease over 30 years now. In the last two years she has developed symptoms which I believe to be end stage symptoms. She's down to 80-85 pounds from 135, she has no apatite, vomits more days than not, constant nausea. In the last two months her ankles have been severely swollen and she had no idea why. She has extreme fatigue and severe short term memory loss. She is often confused, either from the memory issues or just in general, I'm not sure. Her skin sometimes has a pale yellow hue, though I am certain I've been seeing that on and off for years.

The problem for me is that I am one of those need to know types. She's made the choice not to fight it. She isn't a viable candidate for transplant because of other health issues. I've asked her to see a doctor so we at least have a round about estimation of when the the end will have to be faced. She refused. She says she doesn't want to know, that knowing when her own expiration date is would be beyond depressing. I get that, and I guess it's her choice.

So I'm wondering if anyone has ever had a loved one pass on from this disease. If maybe anyone has any guesstimations about how long a person has once they have the symptoms she has now. I've done some reading online, several sites confirmed these are all end stage symptoms, but I haven't found a site yet that really touches on just how long that end stage may be. Considering a person can go for 30 years without any symptoms, not even knowing they have the disease, perhaps the end stage of it is more like a few years instead of a few months? I don't know. I'd like to know, though.

Any help would be welcomed and appreciated. Any trolls may kindly fuck off.

Have you seen this?

http://www.doctoryourself.com/hepatitis.html

 

[semen4her]

I do.

I have it every morning with my breakfast.

 

[semen4her]

Oh wait.

That was vitamin C.

Your friend should have used a clean rig.

 

[KRCummings]

Oh wait.

That was vitamin C.

Your friend should have used a clean rig.

But then she'd have nobody to use to draw attention to herself.

 

[Phelia]

A friend's mother passed away from Hep C a few years ago. I was not familiar with her symptoms, but I can say that after being given an estimate of three months to live from her doctor, she was able to hold on for another year. Even an expert can get it wrong. I can completely sympathize with wanting to find and hold onto something concrete and quantifiable in dealing with something so profoundly painful and abstract, but that doesn't mean that it will definitely be helpful for you.

It sounds cliched, but I think instead of trying to count the days ahead of time, it would be better to embrace them as they come. Life comprises a million tiny moments; in a way we are fortunate for the reminder to cherish every single one. If her symptoms are already as severe as you've described (and likely to worsen), it may be that she'd be more comfortable at home than on a bucket-list vacation anyway. Even if she's not interested in treatment, maybe she would be open to palliative care to alleviate some of her discomfort?

My sincere condolences for both of you, and I hope that her time is as painless and enjoyable as possible. She is lucky to have you to share it with.

 

[klingle]

She is lucky to have you to share it with.

Just quoting before KRCummings jumps on it.

 

[December]

I can completely sympathize with wanting to find and hold onto something concrete and quantifiable in dealing with something so profoundly painful and abstract, but that doesn't mean that it will definitely be helpful for you.

It sounds cliched, but I think instead of trying to count the days ahead of time, it would be better to embrace them as they come. Life comprises a million tiny moments; in a way we are fortunate for the reminder to cherish every single one. If her symptoms are already as severe as you've described (and likely to worsen), it may be that she'd be more comfortable at home than on a bucket-list vacation anyway.

You're absolutely right. I want to know, because somehow I would feel better knowing, or I think I would. But you're right. There is no guarantee the doctors would get it right, and no guarantee it would actually make me feel any better.

Today has been full of eye openers.

I think I need to do just what you said and just take each day for exactly what it is. Trying to make plans around death is a stupid idea. Thanks, I appreciate this post more than you'll ever know.

 

[fuckwaffle]

Here's the situation. Someone very dear to me has had this disease over 30 years now. In the last two years she has developed symptoms which I believe to be end stage symptoms. She's down to 80-85 pounds from 135, she has no apatite, vomits more days than not, constant nausea. In the last two months her ankles have been severely swollen and she had no idea why. She has extreme fatigue and severe short term memory loss. She is often confused, either from the memory issues or just in general, I'm not sure. Her skin sometimes has a pale yellow hue, though I am certain I've been seeing that on and off for years.

The problem for me is that I am one of those need to know types. She's made the choice not to fight it. She isn't a viable candidate for transplant because of other health issues. I've asked her to see a doctor so we at least have a round about estimation of when the the end will have to be faced. She refused. She says she doesn't want to know, that knowing when her own expiration date is would be beyond depressing. I get that, and I guess it's her choice.

So I'm wondering if anyone has ever had a loved one pass on from this disease. If maybe anyone has any guesstimations about how long a person has once they have the symptoms she has now. I've done some reading online, several sites confirmed these are all end stage symptoms, but I haven't found a site yet that really touches on just how long that end stage may be. Considering a person can go for 30 years without any symptoms, not even knowing they have the disease, perhaps the end stage of it is more like a few years instead of a few months? I don't know. I'd like to know, though.

Any help would be welcomed and appreciated. Any trolls may kindly fuck off.

My spouse was infected for over 35 years. At age 50 the infection was discovered and a one year course of Interferon and ribovarian, both anti-virals, were prescribed. Within months the viral load was zero and treatment was suspended. At age 64 the viral load is still zero.