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impressive

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Thirteen years ago today – at just about this time, too – I was in the recovery room following the emergency c-section delivery of my first child, and I was planning his funeral. I'd just spent two hours in the operating room watching too many doctors scurrying around – cutting me open without regard for how I'd be sewn back together, yanking a big baby from my gut and doing absolutely hideous things to him to get him to just BREATHE.

I held a pillow over my gut as the anesthesia wore off 'cause it felt like my sobs would tear open the incision. Right before they moved me to a room, a wheeled bassinet-thingy passed by and I got to peek at him – buried in tubes and wires. They flew him to the tertiary care NICU across town. A helicopter, just to cross town.

Less than 24 hours later, I convinced the doctors to release me so that I could be with him. "I'll be at another hospital, for Christ's sake!" I screamed at them. They let me go – against their better judgment. They did it because they were certain my son would not survive, and they didn't want to deprive me of the chance to spend some time with him.

I never told anyone how much I bled those first few days. I was afraid they'd make me leave his side. I leaked everywhere: blood from below, tears from above, and milk from my breasts.

I remember the parade of forms – consent forms for various extreme measures: lung surfactants, ECMO, Broviac ... Words no parent should ever have to hear.

I remember how huge he looked compared to all the preemies.

I remember them saying, "Don't get attached. He won't survive to leave the hospital."

I left his side only when forced: when the doctors made rounds, nursing shift changes, and when my husband spelled me for a couple hours so I could shower. During those times, I left a tape recorder there for him – with my voice reading to him. I slept in the rocking chair beside the ... I suppose you'd call it a bed, sorta.

I remember the day I returned after rounds to discover that one of the two ventilators (the "jett puff" one) had been removed and the ugly drainage tube sticking out of his side had been pulled. That was also the day that they told me he wouldn't need the ECMO after all. Extra Corporeal Membrane Oxygenation. In other words, lung bypass. I nearly fainted.

One by one, the IVs came out – but not before he'd blown so many of them that it looked like someone put cigarettes out on his precious skin. They even shaved patches of his thick, dark hair for scalp IVs.

The nurses snuck me food, although eating in the NICU was against the rules. They wheeled in a breast pump every few hours. By the time they started him "on calories" (through an NG tube – oh, 'scuse me, naso-gastric tube for the unscarred), I had over 3 gallons of expressed breast milk waiting in their freezer.

I remember each prognosis – carefully worded pessimism. One particularly callous neurosurgeon said, "It only takes a brain stem to be a baby." One warned, "He'll never even recognize you." (Wanna bet, asshole?)

I remember the hospital social worker pulling me aside to deliver information about institutions: "You can have more children, honey. Place him here. He'll get excellent care. Get on with your life." (As if.)

I remember holding him for the first time – when he was three weeks old – and the entire NICU staff standing around us, crying and applauding.

I remember bringing him home – when he was four weeks old – and, for the first time, nursing him directly from my breasts. (They never did know that I wet my pinkie with breast milk and put it in his mouth at the hospital – while he was "eating" through that damned tube. I wanted him to taste, damn it!)

I remember every damned time he did something that someone said he'd never do.

Ten years later, he was named as one of our community's "most influential citizens."

Today, he became a teenager.
 
impressive said:
Today, he became a teenager.
I'm glad he made it into the world,
but you're going to regret this teenage time.

His brain shuts down,
his hormones rage,
he thinks with the little head,
and he'll do many of the things you did as a teen.

Happy birthday to your guy.

:rose:
 
Imp, that was the most moving thing I've ever read. I'm so glad for you that he pulled through, but I'm sorry to hear he's entered teen years ;) Have fun with that
 
A milestone, indeed, making me even prouder to call you a friend than I was before ... if that's possible. You are an amazing woman. He is, naturally, an amazing man-child.

:kiss: - You

:kiss: - Him
 
impressive said:
Thirteen years ago today –


awwwww.... *tears*

you really moved me... I just saw a mother yesterday whose baby was born 2 months early and was in NICU for 5 weeks... I drove her to the hospital when she called me in the middle of the night, contractions started, bleeding, water broke, too early... her husband was up north, 5 hours away...

beautiful little girl, big for her age, and doing fine now, home with her parents, I held her just yesterday...

they're so strong, these little bodies, great big souls in there...

blessings to you, Imp.
 
Thankfully, doctors know a lot. Even more thankfully, they don't know everything. Happy 13th birthday to both of you.

My cousin's daughter, who "would never survive to leave the ICU" after she was born, will be nineteen this year.
 
Love and hugs to you and your little guy Imp :rose: . Being the mother of a sick child, one that doctors said would never function "normally" in society isn't easy but when we reap the rewards that everyone said we wouldn't, it's worth it huh.:)
 
Well done, Imp! Truly Impressive :) .
Don't let the others scare you - my son made it through his teens in great shape! (Of course, hindsight is wonderful...)
 
The doctor walked into the recovery room where my ex was holding my daughter for the first time. He informed us casually that he was 95% certain she had downs syndrome. Despite my dislike for the woman, I'll never forget her looking at our daughter and telling her how perfect she was and insisting their was nothing wrong with our baby. I shut down, unable to deal with the thoughts. A week later, the tests came back showing her to be perfectly healthy. Not only do doctor's not know everything, a lot of them need a royal ass-kicking from time to time.

Your story was beautiful and moving. If you haven't already done it, you should make it into a full story (too many sad, true stories like yours in the N-E section). It made me remember something fond about my ex (trust me, that's a miracle).
 
Glad to hear they were wrong. When my daughter was born her cord was around her neck, it was no where as long as what you said, but those were the longest few minutes of my life.
 
:) Life is grand sometimes.



ps. If doctors were right all the time, I wouldn't be here typing this.
 
You should try to publish this in a nursing magazine or some such ... health care providers need to hear about these experiences from the patient's/families perspective, and you write so beautifully.

Your bleeding was normal: lochia is "like" a period, it is bleeding from the site in the uterus where the placenta was attached. It goes away after a few days. It is scary leaving the hospital with such a wound and unfamiliar bodily changes, as well as the horrific stress of your baby's condition.

You instinctively did the EXACT RIGHT THING in having your son suck on your finger! Many times babies born before 37 weeks can't suck (they either don't have the neurological wiring for it yet or the strength to do it) and this is one way to teach them. This is what lactation consultants will tell moms to do. I bet your breast milk helped him pull through: it is full of what the baby needs. A woman's body knows what the baby needs.

I hope you filed formal complaints against the MDs (I gather they were all MDs, no nurses were so insensitive to you, I hope?) who said those horrible things to you. You would be within your rights. If I was another nurse listening in on those conversations, I would encourage you to file complaints. Those are unacceptable statements. Nobody knows how impaired a person may become, or if they will recover or not. We are not to give false hope, but neither can we encourage despair.

Happy birthday to you and your son!
 
Here's to the many milestones you two have passed and the many yet to come :heart: :rose:
 
That was beautiful and very moving, thanks for sharing your experience.
Happy birthday to your little guy :rose:
 
*With tears rolling down my face* :rose: :kiss:

As the mother of a 6 week preemie, I congratulate you... and your son. Doc's definitely don't know everything. My 10 year old wasn't suppose to be "normal" either. Yeah, whatever!

Happy Birthday to the "Little Imp". :D
 
You both have the heart of warriors :rose:
May you both celebrate many more milestone and create more memories.
:) :heart: :rose:
 
Wonderful story, Imp.
May you and your special teenager, share many more wonderful birthdays.

:heart: :heart:
 
Congratulations on your and your son's milestone. Just as there have already been many, I'm confident that there will be many, many more.
:heart:
Jenny
 
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