Get Well StarryNightin64

[starrynightin64]

I understand very frustrating. First thing's first really hoping your health is better

I hope things are doing better today... I hope you find something to smile about and some good news for a change.

Thanks... It's got to swing back to better sooner or later.

I finally cried last night over the loss of my friend. 23 years he'd been in my life. That hurts much more then even the landlords selling my home for the last 25 years out from under me. I lost it at 4 am and can't seem to stop crying except to sleep. It hurts even more to know that I wasn't a part of his current life because I didn't fit... People he worked with had made fun of him knowing/ hanging out with me before so I stopped even popping in on him in public. Thank God for the string of Facebook. He'd friended me and kept track of me there sending PMs once in a while.

So this will be a quiet stay home to sort, pack & cry day.
The shoulder will sort it's self out. It takes time to settle since my joints hyper flex, something Kangaroo Boy my PT doesn't understand but my doctors do. Once I can get back to the KT Tape it should wiggle back in. As long as I don't fall or try to move anything too heavy it should be OK.

I just feel like I've got no rudder, compass or map. Most my base foundation for the last 25 years is gone. My home, the friend I've know the longest who I could trust, a large part of my volunteer work plus I can't go back to painting right now due to the shoulder and the house packing. I had one friend say to look at it like I have been a caterpillar and I'm in the stage where I break out of the chrysalis to fly. I'm trying to hold on to that image really hard right now.

 

[starrynightin64]

Well I've made it thru another week.

Lost another friend but this time I blocked off her. This was the one who was not just being ugly and pushy before surgery trying to get in here, but even brought her son over 30 minutes after I got home from surgery like I was having a house party. She's the one who was trying to get in here to grab stuff "to help me" by selling it on line. Then I'd never see it or the money again. She's done this to a few other people so I have kept her out.

This time she started texting links to places I can't live in... 3story walk up apartment. Seriously with 2rebuilt Achilles tendons??? Plus she knows I'm saving every penny for deposits and only have a small amount. But worse she was talking "for and about me" trying to line up money/ help for me to move from one of her patients who is one of my veterans. I'm still livid. That's not her business or place to put her nose. This veteran has my number to call directly if he needs help, but I font beg like that. I'm beyond embarrassed. Plus I'm not one of his church members and I'm not taking anything from a church who has members more needy then I am. I called to apologize and found out she had "helped him by selling stuff on line" but had never seen his items or any money either.

So all the added stress she had been putting on me on top of the stress I'm under is now cut off. And no restraining order!!!

Are there any normal people / friends out there who don't use people anymore?????

 

[leftie]

Hi Starry,

Just popping in quickly to say hi and keep your chin up we're thinking of you!

 

[aussiegeekygal]

All the best, Starry. Wishing you a speedy recovery. I look forward seeing you back around these places in your top form.

Take care of yourself.

 

[starrynightin64]

All the best, Starry. Wishing you a speedy recovery. I look forward seeing you back around these places in your top form.

Take care of yourself.

Thank you.
Just sent you a PM when I saw your news.
I'm here if I can be of any help. Just been stuck using the cell on here so I pop in fast. The laptop is easier for surfing and playing.

 

[starrynightin64]

OK so I need some opinions and you can PM if you prefer.

Here's my quandary....
I've got a couple incredibly smart lady veteran friends who want to help on the moving deposits issue by doing a gofundme or PlumFund thing. It's just been my experience that those things only work for dire medical issues promoted by the media or stupid things like the guy asking for $20 to perfect a pancake recipe.

The shoulder surgery I just had was from snapping & tearing muscles from last Thanksgiving and Christmas taking hams, turkeys and food boxes to some veterans families and the local First Responders for a holiday meal for those on duty. I couldn't get help delivering the items besides my support team windlass who has no business health wise lifting these kinds of heavy things too.

If I can't get help on something that simple during a holiday season. And when I have asked for help when I need it before on other things for myself... Why would the fundraising thing for me work?? Why anyone want to help or invest in me??? I just don't want to waste anyone's time or be a burden. But I've had 2 other ladies I know thru doing the support work who said do it just this week.

Any thoughts???
And please don't be rude.

 

[guns44]

Dont know your situation or anything, but I hate to see anyone going through tough times, so I wish you speedy recovery and hope everything works out for you!

 

[starrynightin64]

Dont know your situation or anything, but I hate to see anyone going through tough times, so I wish you speedy recovery and hope everything works out for you!

Thanks for the post. What was just another ortho surgery & just another summer in bad living conditions is changing into losing half my life's foundations. The slumlords are selling the house out from under me where I've lived 25 years. An extremely special old boyfriend died & then 5 days later I lost the diamond out of that ring. Both had been around almost 24 years. On top of the normal post surgery pain & the summer heat with no AC in here. So the stress has been stacking up pretty high since March 1st. Enough I've lost around 35 pounds.

 

[starrynightin64]

UPDATE -
6 more weeks of PT but we are looking for a PT that can tape my shoulders since my needle Doc is out of commission for a while. I also ordered a cupping set so I can do that part myself.

The Humana Case Manager issue has been taken care of. I scared the hell out of them badly. As in badly enough they not only gave me a nurse with an MS background but also one whose used to working with younger handicapped people. Then after she spent 90 minutes with me on the phone she called back while I was checking out on a grocery run to Walmart. Apparently what she saw in the report from the nurse who came here to the house was not good. As in she called me & told me how to file a grievance on that nurse. AND made sure I knew that I had up to 60 days to do it.

 

[Matt_Next_Door]

UPDATE -
6 more weeks of PT but we are looking for a PT that can tape my shoulders since my needle Doc is out of commission for a while. I also ordered a cupping set so I can do that part myself.

The Humana Case Manager issue has been taken care of. I scared the hell out of them badly. As in badly enough they not only gave me a nurse with an MS background but also one whose used to working with younger handicapped people. Then after she spent 90 minutes with me on the phone she called back while I was checking out on a grocery run to Walmart. Apparently what she saw in the report from the nurse who came here to the house was not good. As in she called me & told me how to file a grievance on that nurse. AND made sure I knew that I had up to 60 days to do it.

Proud of you for following through with this! Hope you are progressing and all these issues can be resolved!

 

[starrynightin64]

Proud of you for following through with this! Hope you are progressing and all these issues can be resolved!

Thanks I can only try.
I'm pretty cried out after the past 6 weeks.

 

[hotoldrguy]

UPDATE -
6 more weeks of PT but we are looking for a PT that can tape my shoulders since my needle Doc is out of commission for a while. I also ordered a cupping set so I can do that part myself.

The Humana Case Manager issue has been taken care of. I scared the hell out of them badly. As in badly enough they not only gave me a nurse with an MS background but also one whose used to working with younger handicapped people. Then after she spent 90 minutes with me on the phone she called back while I was checking out on a grocery run to Walmart. Apparently what she saw in the report from the nurse who came here to the house was not good. As in she called me & told me how to file a grievance on that nurse. AND made sure I knew that I had up to 60 days to do it.

great news!

 

[starrynightin64]

EXTRA Update as of this morning ~ The girl at the benefits department decided to escalate the case manager issue up on Tuesday when I called to ask for guidance on how to handle the problem. So when I called today to ask them to please set it up as a grievance it was already done. So God forbid that nurse who was here does this to another younger patient.

I also ask if they could add in a request. I'm not the only younger handicapped person to hit the age discrimination issues. This was just a first time within Humana and it shook me up badly since they ALWAYS have had my back. Normally it's been thru 3rd party home healthcare people like the PT who refused to help me because I was too young & healthy compared to her elderly patients. I ask for someone higher up in the company to please consider &/or contact me on setting up some set protocols for dealing with younger handicapped people. Just because we are not elderly doesn't mean we don't have a need for help.

 

[starrynightin64]

Trying to focus on the what is, not the what ifs. So I'm still cleaning out section by section. Need to take a last load of clothes to the charity drop with some small items on Saturday. Then start sorting out art supplies is next plus selling items. I have a personal ice maker that's been used once to prove it works. I need to photo that and try to sell it. There is still the JBL Harmon Kardon surround sound system with black laquor speakers too. My Jack Daniels barrel has been spoken for if I can't keep it, one of my Special Forces support team has her eye on it.

Nothing on the housing stuff yet. Trying to save money, yet keep the PT and shoulder recovery going. Since my needle Doc is out of commission for a while, the new PT will tape & I ordered a cupping kit for $25 so I can do my own shoulders. There is a needle guy local who does community needles a couple times a week for $15 + on what you need. I can keep my PTSD ear needles in by just retaping them.

Even though I have a call into Lutheran Services, I'm not counting on anything help wise. I'm thinking Ox's honey is correct on the crowd funding thing. I've had 3 other ladies I trust as well say to do it. So that's on my research next project this weekend. Around here landlords all want credit checks to even apply to rent but charge $ 25 - $50 to just apply. There are some who just take the money, say nope and never do the check... Nice scam to pocket cash.

 

[starrynightin64]

I'm not sure how much more of this I can really take.

 

[BlackCashmere]

I'm not sure how much more of this I can really take.

((((((((((Big Hug))))))))))...Sending you lots of love and light and wishes that you truly know how much you are cared for...

 

[starrynightin64]

((((((((((Big Hug))))))))))...Sending you lots of love and light and wishes that you truly know how much you are cared for...

Thank You

I wish that were true. I have no one here helping on anything. The case manager & Social worker were all a horrible joke. The nasty nurse they sent out hit me with Age discrimination bad enough her own Supervisor had me turn her in and the following people who read her report have been a joke of lazy people who don't care and no one has removed that report. so That is the next step to bring down he big people in Humana on them to remove that report & fix the problem. But it all takes time & I only have 4 months left.

I started going thru again on more research on low income senior housing here & it's all one big mess that doubles in on itself. it all comes back to having money or HUD / Sec 8 & that's again a 5 year waiting list. I did the research for Plum Fund which is great but I need an idea of how much to set that up for. I have no freaking clue. It's just getting too overwhelming & more then I can handle.

 

[starrynightin64]

Had the best day yesterday that I've had in a looooong time. It's amazing what a little hope can do for a person.

I got a list done of things I needed to get accomplished. Just errands & such but that felt so good
not having to put things off & not hurting too much either.

The biggie is the new PT. Yesterday was my first full appointment with her for treatment. OMG... The difference between her & every other PT I have had is amazing. It's a tag team effort. She explains everything & it's all stuff that is way different from the PTs who are doing the same old crap the others have done. Nothing is hard to do just freakin hurts like hell so I know we are getting to exactly where I need the help. She is open to & uses new technology like the Kinesiology tape, things like cupping and acupuncture that have been around forever and using the mix with what she knows about muscles & recovery to build a plan.

Her take on my continued issue is this: I broke that collar bone 5 years ago when I had the huge fall Jan 2011 and didn't know it was broken. Because I wasn't allowed medical coverage by Medicare (3 years total) for another 6 months I was stuck in bed, packed on ice taking 4 Aleve at a time and seeing my Acupuncture friend once a week. So for 5 years I have been living with a broken arm/ shoulder and using it any way I could manage but not like a normal one. So we are building back up the tiny supporting muscles & area teaching me to use it as a normal shoulder. The 2.5 years of wearing the tape to pull my shoulders back and down to a more normal position has been a great first step. This is the next one!!! I am so excited and that's a huge relief!

I also just sent an email request for help into my REALLY BIG level contact in Humana. I need a social worker who will not blow me off & knows how to do her job to work with me on this search for a place to live & a program I qualify for. Every time I start research a few hours in I get hit with a panic attack cause it all comes back down to either needing money or the 5 year waiting lists for HUD / Sec 8 low income housing.

 

[hotoldrguy]

Had the best day yesterday that I've had in a looooong time. It's amazing what a little hope can do for a person.

I got a list done of things I needed to get accomplished. Just errands & such but that felt so good
not having to put things off & not hurting too much either.

The biggie is the new PT. Yesterday was my first full appointment with her for treatment. OMG... The difference between her & every other PT I have had is amazing. It's a tag team effort. She explains everything & it's all stuff that is way different from the PTs who are doing the same old crap the others have done. Nothing is hard to do just freakin hurts like hell so I know we are getting to exactly where I need the help. She is open to & uses new technology like the Kinesiology tape, things like cupping and acupuncture that have been around forever and using the mix with what she knows about muscles & recovery to build a plan.

Her take on my continued issue is this: I broke that collar bone 5 years ago when I had the huge fall Jan 2011 and didn't know it was broken. Because I wasn't allowed medical coverage by Medicare (3 years total) for another 6 months I was stuck in bed, packed on ice taking 4 Aleve at a time and seeing my Acupuncture friend once a week. So for 5 years I have been living with a broken arm/ shoulder and using it any way I could manage but not like a normal one. So we are building back up the tiny supporting muscles & area teaching me to use it as a normal shoulder. The 2.5 years of wearing the tape to pull my shoulders back and down to a more normal position has been a great first step. This is the next one!!! I am so excited and that's a huge relief!

I also just sent an email request for help into my REALLY BIG level contact in Humana. I need a social worker who will not blow me off & knows how to do her job to work with me on this search for a place to live & a program I qualify for. Every time I start research a few hours in I get hit with a panic attack cause it all comes back down to either needing money or the 5 year waiting lists for HUD / Sec 8 low income housing.

glad you got that PT Starry!! Sounds like a real upbeat positive day for you. You deserve it!!

 

[Inspirinious]

Had the best day yesterday that I've had in a looooong time. It's amazing what a little hope can do for a person.

I got a list done of things I needed to get accomplished. Just errands & such but that felt so good
not having to put things off & not hurting too much either.

The biggie is the new PT. Yesterday was my first full appointment with her for treatment. OMG... The difference between her & every other PT I have had is amazing. It's a tag team effort. She explains everything & it's all stuff that is way different from the PTs who are doing the same old crap the others have done. Nothing is hard to do just freakin hurts like hell so I know we are getting to exactly where I need the help. She is open to & uses new technology like the Kinesiology tape, things like cupping and acupuncture that have been around forever and using the mix with what she knows about muscles & recovery to build a plan.

Her take on my continued issue is this: I broke that collar bone 5 years ago when I had the huge fall Jan 2011 and didn't know it was broken. Because I wasn't allowed medical coverage by Medicare (3 years total) for another 6 months I was stuck in bed, packed on ice taking 4 Aleve at a time and seeing my Acupuncture friend once a week. So for 5 years I have been living with a broken arm/ shoulder and using it any way I could manage but not like a normal one. So we are building back up the tiny supporting muscles & area teaching me to use it as a normal shoulder. The 2.5 years of wearing the tape to pull my shoulders back and down to a more normal position has been a great first step. This is the next one!!! I am so excited and that's a huge relief!

I also just sent an email request for help into my REALLY BIG level contact in Humana. I need a social worker who will not blow me off & knows how to do her job to work with me on this search for a place to live & a program I qualify for. Every time I start research a few hours in I get hit with a panic attack cause it all comes back down to either needing money or the 5 year waiting lists for HUD / Sec 8 low income housing.

Glad to hear that you are having a relatively better day. Wishing you all the best.

 

[starrynightin64]

glad you got that PT Starry!! Sounds like a real upbeat positive day for you. You deserve it!!

Glad to hear that you are having a relatively better day. Wishing you all the best.

Thanks Guys! It was a really good day. today was weird crazy crap but not bad.
Got the letter sent off to my big contact at Humana and managed to get my back and shoulders prepped
for tomorrow and a new tape design the new PT is trying. I guess this week is baby steps but forward at least.

 

[leftie]

Hi Starry,

Just popping while you're asleep to say hello and hope you have a good day tomorrow!

 

[LustfulOne50]

Toast to your health get better ...looking for my C-4 now....not...better listen to your doctors..or.:caning:

 

[starrynightin64]

Toast to your health get better ...looking for my C-4 now....not...better listen to your doctors..or.:caning:

I'm up the road from you for my PT now. This awesome new lady is the very best PT I have ever had.
She's new, a doctor & looks like she is in high school but up on all the newest stuff.
Everything that makes me a fruit-loop in other PTs places makes me advanced at this one.
I'm up by Super Target on Gulf to Bay. Long drive from south county but really worth it.

 

[starrynightin64]

Hi Starry,

Just popping while you're asleep to say hello and hope you have a good day tomorrow!

It's PT Day!!!
That's always a good day but kicks my butt hard too.
Trying to have better days now that I at least have a really advanced PT.

How have you been??