When faced with a disease you do not understand.

[pointless]

anyone else smell a sympathy troll?

 

[Johnny_Ray_Wilson]

anyone else smell a sympathy troll?

I just PMd your asshole buddy.

Good timing on your behalf though, I actually expected you earlier bubba.

 

[RoryN]

anyone else smell a sympathy troll?

Big time.

He just PMed me with "Hi Asshole!". A healthy attitude is critical to recovery.

 

[slave_]

I am scared. I really am. I do not know how to deal with this. I am used to being the calm one.

Set an appointment to speak to your doctor or someone he or she can refer you to. There should have been advice/followup/protocol/something your Dr. left you with.

I mention to do this as opposed to getting your info from the internet. You'll come across something that will freak you out and very likely not fit your profile at all!

Call them in the morning. Freaking out should at least have the Dr. or someone on staff talk to you.

 

[Johnny_Ray_Wilson]

Lupus erythematosus is a chronic, inflammatory, multisystem disorder of the immune system. “Lupus” means wolf and Erythematosus means “redness.” Doctors coined this name for the disease because they thought the facial rash that frequently accompanies lupus looked like the bite of a wolf.

Right. There are 3 type phases, or levels, of Lupus. Lupus of the skin is not really considered a problem at all.

Lupus that effect the immune system is considered seriously life threatening and fatal in all respects. W/out the immune system, you are seriously fucked (ergo you could die any day)

 

[Johnny_Ray_Wilson]

Big time.

He just PMed me with "Hi Asshole!". A healthy attitude is critical to recovery.

Unlike YOU, I will not deny that. Because you truly are one.

Care for me to post it on the GB, asshole? I have no problem with that. Then again, there are so many people you fuck with here, I doubt anyone would notice it.


Amazing your and your buddy pointdumbass agree on something, right?

 

[RoryN]

Unlike YOU, I will not deny that. Because you truly are one.

Care for me to post it on the GB, asshole?

NO! Please don't. A PM is fine, but please don't post your devastating private comments to me in a thread!


(Srsly? LOL.)

 

[Joeybagadonuts]

My advice is to take it liker a man and start consuming maximum quantities of drugs, alcohol and hookers.

 

[Johnny_Ray_Wilson]

Set an appointment to speak to your doctor or someone he or she can refer you to. There should have been advice/followup/protocol/something your Dr. left you with.

I mention to do this as opposed to getting your info from the internet. You'll come across something that will freak you out and very likely not fit your profile at all!

Call them in the morning. Freaking out should at least have the Dr. or someone on staff talk to you.

Uhm..........thanks. But I uhmm...did all that before starting this thread.

I did a LOT of stuff in regards to Lupus. I NEVER do the 'interntet.google thing" or whatever folks do to pretend to be something they are not.

 

[Bert Notorius]

I knew a girl that lived almost 6 years with it.

 

[Mike_Yates]

The medical cartel wants to milk you for as much money as possible when you are diagnosed with a disease.

Big corporate medicine is not about health and healing, but rather about making maximum profit!

They see human life as essentially being worthless, and as revenue generating units.

 

[pointless]

you should have went with cancer or als.

 

[Johnny_Ray_Wilson]

NO! Please don't. A PM is fine, but please don't post your devastating private comments to me in a thread!



(Srsly? LOL.)

Calling you an asshole in private is not really private. It is common knowledge.

If you doubt for one second I was joking, then you are sadly mistaken. I truly meant everything I every said to you about kicking your ass to a pulp in the past. And now you make fun of of this disease I have no control over?

Not ever a threat to you, but forever a PROMISE.

You do understand the difference between a threat and a promise correct?

My advice is to take it liker a man and start consuming maximum quantities of drugs, alcohol and hookers.

I wish I could.

 

[warrior queen]

My sister-in-law has lupus. She has had it for 14 years. She lives almost normally with some bad days.
Stop being such a fucking drama queen.... 'OMG, I'm gonna DIE!!!'... and go get some real medical advice and management.

 

[Johnny_Ray_Wilson]

you should have went with cancer or als.

Unfortunately, I have no choice in that matter. You gotta problem with that too asshole? Do you and your buddy RoryN want to dictate to others whatever diseases their bodies cab or cannot control?

 

[RoryN]

If you doubt for one second I was joking, then you are sadly mistaken. I truly meant everything I every said to you about kicking your ass to a pulp in the past. And now you make fun of of this disease I have no control over?

Not ever a threat to you, but forever a PROMISE.

You do understand the difference between a threat and a promise correct?

Yup. You're not good for either.

Stop being such a fucking drama queen.... 'OMG, I'm gonna DIE!!!'... and go get some real medical advice and management.

Tough medicine is the best medicine.

 

[slave_]

Uhm..........thanks. But I uhmm...did all that before starting this thread.

I did a LOT of stuff in regards to Lupus.

Sorry. I didn't gather that from your posts.

 

[patient1]

Google "lupus forum "

You'll find some more support, understanding, and better information. Take your time there.

 

[KingOrfeo]

I am scared. I really am. I do not know how to deal with this. I am used to being the calm one.

It's incurable, but highly treatable. (Nowadays; used to be a death sentence. Like a lot of things.)

 

[Johnny_Ray_Wilson]

My sister-in-law has lupus. She has had it for 14 years. She lives almost normally with some bad days.
Stop being such a fucking drama queen.... 'OMG, I'm gonna DIE!!!'... and go get some real medical advice and management.

I understand Lupus. I just never imagined it would ever effect me. The chances are so remote, particularly for men.

Mind you, I DO NOT WANT TO DIE. I am looking for ways to survive and thrive. Why else would I post this thread?

And, thank you.

 

[pointless]

Sorry. I didn't gather that from your posts.

don't apologize. he's a lying sack of shit.

 

[Wrong Element]

It's an ironic shame that this thread didn't appear until after House aired its last episode.

 

[Noor]

The way I deal anything medical is research the hell out of it. Also speak to my doctor, get second/third opinions, find the best place for treatment and talk to other suffers.

Lupus is no fun, I have known and know people with it.

Michael Jackson had it.

It does seem to hit males harder but there is treatment and I have known people to live in their 70's with it.

Stress does not help, so learn to chill. Start doing

We are all dying from the day we are born, some of us die sooner, some of us die peacefully and all one can do is live the best life possible.

 

[RoryN]

It's an ironic shame that this thread didn't appear until after House aired its last episode.

Oh snap. Tell me I'm not the only one who got this...

But wait - diff. time zones?

 

[Johnny_Ray_Wilson]

Sorry. I didn't gather that from your posts.

Apology accepted. Only in the past several years have I had to battle addiction to alcoholism. A different story for many people.

Right now, I want to know, and I want to know know.......is how can I either beat or learn to live with this Lupus?

I really do not expect advice that works for Lupus victims................................I am just.....scared.. I never expected this, however I fully intend to both accept and fight the good fight.