Is anyone else helping someone with a degenerative illness?

[Chernosoth]

My mom and my aunt will probably move in with me next month. They have degenerative everything, but one seems much closer to her end. And we might be squeezing more people in later as all of my relatives struggle with stagflation. I moved some furniture, so I'm done for a while until they come here, see the rooms, and make some decisions.

 

[Scareltt]

My mom and my aunt will probably move in with me next month. They have degenerative everything, but one seems much closer to her end. And we might be squeezing more people in later as all of my relatives struggle with stagflation. I moved some furniture, so I'm done for a while until they come here, see the rooms, and make some decisions.

It breaks my heart to read that.

 

[Scareltt]

I'm going back to college for Human Services / Psychology. One of the things I want to do after graduation is caregiver counseling/support.

My Hero!

 

[RoperTrace]

The gallows humor is something, I have a difficult time with..

Sadly I’ve been with 3 friends, 1 parent, and 4 grandparents final stages. Plus all of Matty’s family…

I remember fighting back tears as some of them planned their funerals.. it’s a selfless thing to say. “I don’t want this to be (whatever adjective) for my friends and family. Make sure everyone has good food, and booze..”

My older girl cousin planned her own wake after the funeral service. She was a super organized lady, we had prime rib and an open bar. It was great, her husband was hammered.

 

[lit_ch3]

My time as a caregiver's over. During that time I met someone out walking my dogs. Only just found out she's been caregiving as well. We started exchanging emails, tentative at first.

Then she kinda opened up. Kinda. Had to read between the lines. I'd been there, at least where she was alluding to and took a chance. I dressed her down for going down those mental paths, take 1 day, 1 hour at a time if need be. There's a lot to take care of, without sinking yourself mentally, before you even start your day. Make the most of every minute you get to yourself.

I've been there. Hardest thing I've ever done. I don't even think there's a second place.

Luckily, she appreciated not only my comments, but that I'd figured out what she was really saying. So glad I could help.

 

[Scareltt]

My time as a caregiver's over. During that time I met someone out walking my dogs. Only just found out she's been caregiving as well. We started exchanging emails, tentative at first.

Then she kinda opened up. Kinda. Had to read between the lines. I'd been there, at least where she was alluding to and took a chance. I dressed her down for going down those mental paths, take 1 day, 1 hour at a time if need be. There's a lot to take care of, without sinking yourself mentally, before you even start your day. Make the most of every minute you get to yourself.

I've been there. Hardest thing I've ever done. I don't even think there's a second place.

Luckily, she appreciated not only my comments, but that I'd figured out what she was really saying. So glad I could help.

None of this is easy. I’m glad you made a new friend and I’m really glad you were able to help her.

 

[AWonkyDonkey]

I am the one with a degenerative disease. It's neurological. I don't really have anyone to help me who is close by. I have noticed the last few months have been a lot worse than usual and I've just spent 24 days in hospital with another neurological illness.

The future is very uncertain.

 

[lit_ch3]

I am the one with a degenerative disease. It's neurological. I don't really have anyone to help me who is close by. I have noticed the last few months have been a lot worse than usual and I've just spent 24 days in hospital with another neurological illness.

The future is very uncertain.

There's a point where, however you do it, you need to get some outside help in.

 

[Deadfreak]

I am the one with a degenerative disease. It's neurological. I don't really have anyone to help me who is close by. I have noticed the last few months have been a lot worse than usual and I've just spent 24 days in hospital with another neurological illness.

The future is very uncertain.

 

[PennyCleaver]

Wishing everyone the best here. It's a hard, hard road.

I agree with you I’m a caregiver for my husband who has a chronic and painful condition.
Much love to you all

 

[Bosq99]

I agree with you I’m a caregiver for my husband who has a chronic and painful condition.
Much love to you all

I'm so sorry about this....I hadn't realised! That must be quite hard. Is it a full time responsibility?

 

[Lovethefox]

I'm so sorry about this....I hadn't realised! That must be quite hard. Is it a full time responsibility?

It’s likely the hardest thing one can face. Speaking for my situation, it is 24/7, non stop.
The hardest of all is that the afflicted are facing their own mortality and the challenge for them is knowing that what their caregivers are going through to help them. It takes a toll.

 

[UKSilverFox]

I have been a 24/7 carer for my wife for several years as a number of issues took her away from me. It is tough on both the carer and cared for, but you must look after yourself to be useful to those depending on you. "Always put on your oxygen mask before helping others" to quote the airlines and that is appropriate as it feels like being in an extended aircraft disaster at times. I have recently landed, as she passed,but am starting to explore the new world beyond the terminal building a land of opportunity and fun, at least I hope so. Everyone who is a current or former carer deserves a break, don't they?

 

[PennyCleaver]

I have been a 24/7 carer for my wife for several years as a number of issues took her away from me. It is tough on both the carer and cared for, but you must look after yourself to be useful to those depending on you. "Always put on your oxygen mask before helping others" to quote the airlines and that is appropriate as it feels like being in an extended aircraft disaster at times. I have recently landed, as she passed,but am starting to explore the new world beyond the terminal building a land of opportunity and fun, at least I hope so. Everyone who is a current or former carer deserves a break, don't they?

I’m a full time carer.
Great words much love

 

[Noor]

My parents and a sibling. Luckily everyone has a good sense of humor. Some days it seems surreal. I myself have a non degenerating illness, which gets in the way sometimes, I hope to be back in remission soon.
I have a fairly strong support system, but over the last 10 years I’ve lost many of them.

 

[lit_ch3]

I have been a 24/7 carer for my wife for several years as a number of issues took her away from me. It is tough on both the carer and cared for, but you must look after yourself to be useful to those depending on you. "Always put on your oxygen mask before helping others" to quote the airlines and that is appropriate as it feels like being in an extended aircraft disaster at times. I have recently landed, as she passed,but am starting to explore the new world beyond the terminal building a land of opportunity and fun, at least I hope so. Everyone who is a current or former carer deserves a break, don't they?

Very well put. I'm a year past the caregiving stage, am constantly talking/supporting another caregiver I met and will continue to help anyone I run into in the same situation. Most difficult thing I've faced.

And finally started moving on with the rest of my life. Put a lot past me in the last year, and getting optimistic again about the future.

 

[RockOn2019]

It’s definitely not an easy journey. My cousin is in a similar situation—she’s helping her mom who has that diagnosis, and it’s been a tough road. On top of that, she’s also a full-time student, juggling her studies and caregiving responsibilities. Saying it’s intense doesn’t even begin to describe it. She’s shared with me how overwhelming it can be at times, but she’s managed to find a way to lighten her load. She started using services like https://academized.com/buy-college-papers-online, and it’s been a game-changer for her. It’s given her the breathing room she needed to stay on top of her coursework while still being there for her mom. Sometimes, finding a bit of help can make all the difference, and I can see how much it’s improved her ability to manage everything

 

[Chernosoth]

My mom moved in, during shingles. With limited mobility becoming more limited, she mostly sat and watched youtube while I moved the boxes and furniture. My aunt is apparently not moving in for a while. Other relatives are helping her keep her current home.

 

[UKSilverFox]

My mom moved in, during shingles. With limited mobility becoming more limited, she mostly sat and watched youtube while I moved the boxes and furniture. My aunt is apparently not moving in for a while. Other relatives are helping her keep her current home.

Keep some fun in your life, nobody will or has the right to judge. Those who love you will love you the more for it.

 

[coati]

My parents and a sibling. Luckily everyone has a good sense of humor. Some days it seems surreal. I myself have a non degenerating illness, which gets in the way sometimes, I hope to be back in remission soon.
I have a fairly strong support system, but over the last 10 years I’ve lost many of them.

Ten days ago, the last of my elderly relatives died at age 102. She was very Catholic and insisted that only God could choose the time of her death. My partner and I spent ten years taking care of her, hour after hour.

The adjustment to our new life is enormous. I have resolved to insist on my right to die when the burdens I place on others far exceed the sustainable quality of life I have.

 

[Noor]

Ten days ago, the last of my elderly relatives died at age 102. She was very Catholic and insisted that only God could choose the time of her death. My partner and I spent ten years taking care of her, hour after hour.

The adjustment to our new life is enormous. I have resolved to insist on my right to die when the burdens I place on others far exceed the sustainable quality of life I have.

I am so sorry. I totally understand.

 

[UKSilverFox]

Ten days ago, the last of my elderly relatives died at age 102. She was very Catholic and insisted that only God could choose the time of her death. My partner and I spent ten years taking care of her, hour after hour.

The adjustment to our new life is enormous. I have resolved to insist on my right to die when the burdens I place on others far exceed the sustainable quality of life I have.

Can I send you my best wishes. I agree with you wholeheatedly, it is your life to control, no one should have the power to take that right away

 

[coati]

Such a mix of feelings when you are suddenly no longer engaged in intensive care-giving.

Thanks to both of you for understanding...

 

[Wageslave]

I have been a 24/7 carer for my wife for several years as a number of issues took her away from me. It is tough on both the carer and cared for, but you must look after yourself to be useful to those depending on you. "Always put on your oxygen mask before helping others" to quote the airlines and that is appropriate as it feels like being in an extended aircraft disaster at times. I have recently landed, as she passed,but am starting to explore the new world beyond the terminal building a land of opportunity and fun, at least I hope so. Everyone who is a current or former carer deserves a break, don't they?

Every word a true one.
It's your time now

 

[Noor]

Such a mix of feelings when you are suddenly no longer engaged in intensive care-giving.

Thanks to both of you for understanding...

I’m not looking forward to the day, but at times caretaking expands to fill everything.