Sad Rant - Support request

[sachiaiko]

This isnt really GBLT related, other then that i feel like i'm friends with some of you here and would rather post here then elsewhere.

I have something called Fibromyalgia. Its a chronic pain disorder. And i'm just having a really down day and i figured... since i feel so awful, maybe i could just... i dunno. Its not a pitty post, i just figured maybe posting something would help.

I am in so much pain right now that vicadin isnt helping, not even a little. And the meds they have me on are making it hard for me to eat cause i'm so sick to my stomach, and one of them makes me so depressed.

Its hard... i'm 22 and in so my agony i cant go to school or work, or even clean my own house. And i guess right now i'm just feeling so down i dont know what to do.

No one has to really reply to this, i think i just needed to get it off my chest because I just cant stop crying today. :sighs:

 

[CoyoteRavenous]

I hope this finds you better. You have a wealth of people here who I'm sure send their best energy and strength to you now. I have had first hand knowledge from an x lover who also suffered from FibroM. and she is now able to control it almost all of the time. My heart stretches out to you.

 

[sachiaiko]

Thanks, its so hard right now cause my doctor isnt nice too me and doesnt want to medicate me regularly, never mind that i am in agony every day. Some days its so bad i cant get up to make myself food and i just starve while my husband is at work.

Its so hard... and i just feel so hopeless today.

thank for your support...

nikki

 

[naudiz]

Hey there.

I have fibromyalgia, and I've been living with it for several years now. The worst part is always the months following the diagnosis, because there is the reality of it to cope with as well as the struggle to find out what treatments will work -- it's often a trial and error process before the right combination is found. The good news is that life does get livable again.

My thoughts are with you. Just know that there is a light at the end of the tunnel, and it isn't an oncoming train. It is something you can treat. The key is finding out what works for you, because everyone reacts differently.

Please feel free to PM me if you want. Sometimes it helps to talk to someone who has been there. If there is any way I can help out, I'll do what I can. The biggest obstacle to living with fibromyalgia is combating the ignorance surrounding the condition. There is still so little that is known about it, and sometimes just exchanging the information we have can make a difference.

You would be surprised what insights you can find by talking to others living with fibromyalgia -- stuff you would think every doctor would know, but so little seem to. Don't give up and don't lose hope, because you're not alone.

 

[CoyoteRavenous]

Please!!

Please find another Doctor!! Its too common for Doctors to not take this seriously or on the levels it should be. I cant tell you the difference and importance of finding a doctor that is supporting of this. My ex was able to find a docotr whos wife had it and his belief and intrest in it made almost all the difference for her.

 

[naudiz]

I second this. My first doctor was awful. He's fine with treating things like the common cold, but in dealing with fibromyalgia he was bad to the point of cruel.

Shop around until you find a good doctor -- you're worth it, and it'll make all the difference in taking back your life from this illness.

 

[webber1998]

Nikki,

So sorry that you are having a tough go with the disorder at the moment. While I do not have it, a good friend of mine's wife has dealt with it for years. She was an air traffic controller and the doctors ignored her problem for quite a few years and wrote it off to stress. Now, some 10 years later, they have been treating her both with some medications, relaxation techniques, yoga and exercise. Happy to report she is much better and was able to deliver her first child 13 months ago. While she still has bouts with the disorder, she is able to keep it in check most of the time. Quite a bit different then when I first met her back in 1998.

I would definitely find a doctor who is familiar with the disorder and is open to new and better ways to treat it...


Good luck Nikki....

 

[sachiaiko]

you guys rock, thanks for giving me your support and your kindness. It helps, it really does.


I was diagnosed with this illness when i was 14 years old. A LONG time ago, and no one has ever done anything to help me.

My current doc claims to HAVE It, and yet she is still cruel and ignorant, going so far to say that if opiods helps my pain then i dont have FMS, (which is widely known as BULLSHIT) and that i shouldnt be on any kind of serious pain killer.

She's freaking RUDE to me on top of it.

I am doing acupuncture, and this next week she is sending me to a pain management specialist AND a rhumatologist. So hopefully we can finally begin to get those horrible disease under control. i just hate being sick, i am in so much pain constantly that its hard for me to remain up beat.

I dont get to spend as much time around real people, and mostly hang out online until i get so lonely i wanna scream. But when you are in so much pain driving sounds too hard its kinda like "What can ya do?" Ya know?

Everyone has this illness to different degrees, and all i can think about is that my doc who claims to have it just doesnt have it the way i do. I couldnt work no matter how hard i tried, i couldnt hold anything steady down right now. Its hard. :sighs:

At any rate, i really apreciate you guys, your wonderful

:hugs alla round:

Nikki

 

[webber1998]

you guys rock, thanks for giving me your support and your kindness. It helps, it really does.


I was diagnosed with this illness when i was 14 years old. A LONG time ago, and no one has ever done anything to help me.

My current doc claims to HAVE It, and yet she is still cruel and ignorant, going so far to say that if opiods helps my pain then i dont have FMS, (which is widely known as BULLSHIT) and that i shouldnt be on any kind of serious pain killer.

She's freaking RUDE to me on top of it.

I am doing acupuncture, and this next week she is sending me to a pain management specialist AND a rhumatologist. So hopefully we can finally begin to get those horrible disease under control. i just hate being sick, i am in so much pain constantly that its hard for me to remain up beat.

I dont get to spend as much time around real people, and mostly hang out online until i get so lonely i wanna scream. But when you are in so much pain driving sounds too hard its kinda like "What can ya do?" Ya know?

Everyone has this illness to different degrees, and all i can think about is that my doc who claims to have it just doesnt have it the way i do. I couldnt work no matter how hard i tried, i couldnt hold anything steady down right now. Its hard. :sighs:

At any rate, i really apreciate you guys, your wonderful

:hugs alla round:

Nikki

You are welcome and I honestly wish you ALL the luck with finding some help with this. I know that not everyone responds the same to different treatments, but for my friend, getting to the point where she could take on the challenge of childbirth was monumental !!! Having a helping, supportive family, friends and husband helped her also.

Will be pulling for you...

 

[naudiz]

Fourteen? Goodness, that's so young. I'm so sorry to hear that. The offer stands, for talking -- just give me a PM whenever.

Take care!

 

[MissIntrigue]

Originally posted by sachiaiko
Thanks, its so hard right now cause my doctor isnt nice too me and doesnt want to medicate me regularly, never mind that i am in agony every day. Some days its so bad i cant get up to make myself food and i just starve while my husband is at work.

Its so hard... and i just feel so hopeless today.

thank for your support...

nikki

You need to find another doctor Nikki- My best friend has Fybromyalgia also, and her doc doesnot treat her this way at all! First off - one of your patients bill of rights rules are being broken by your doc. The right to being treated with dignity. If you are not okay with your treatment- you are not being treated right, and you have the right to seek care from a CAREGIVER that will treat you with dignity.
I tried like hell to get this woman to try Chiropractic adjusting. Then one day I was needing transportation to the chiro and I asked her to drive me up. She agreed and it occurred to me to invite her into the exam room to watch the adjustment. She was able to talk to doc and ask a few questions on her mind. He answered them for her and found her insurance to cover it except for the co-pay. So she began treatments.
She used to have chronic earaches and stiff necks. Now since she began treatments- I have rarely seen her with either -if it has been an occurance- it was rare and short lived.
The process of Chiropractic care is to free the nerves feeding our organs so that they may have the proper circulation to keep those parts running properly and to be able to heal themselves(the organs). It temporarily relieves her symptoms. It does not work for everyone. It is not a cure -all. It may not work for you. I know she also takes a liquid supplement called phosfood. It apparently breaks up the calcium that deposits on our muscles and rids the body of that. So your muscles will be able to be healthier. She finds that works well also. Chlortrymaline(spelling) is something she takes also along with luvoxx. I hope any -if not some of it has helped maybe you can try - if you havent some or all of these things. I know about those sad, bad days too, I am here for her when she needs me. Be well my dear and good luck to you. I'll check back to see how you are- and also- your hubby maybe might want to make you a sandwich in the morning before work and put that in the fridge for you to be able to get so you dont have to starve while he is away. You should try to eat. Maybe the vicaden is stoppping you from feeling hungry. Narcotics isn't the way to go for your pain. Try other options sweetie....

I wanted to give you a link also....
http://www.efibro.com/
I know they say misery loves company but that is in the case of misery...you need to be seeing what others do and talking it over with a GOOD doc...check it out there's alot of info in here.

 

[bottom boy]

Good luck Nikki, I'm pulling for you.

bb

 

[Lady Christabel]

I have fibro too and I understand. It's taken 7 years to find what works for me. I'm on a combination of meds and physical therapy and it seems to be working well these last 17 months. It doesn't always work, but I've had more good than bad days. If possible, find another doctor. So many docs have little understanding of fibro. I'm on doc #3, but he's a keeper. Keep your chin up--if it doesn't kill your neck--and don't give up.

 

[snickertease]

I don't have fibro, but someone close to me does... I know what you are going through and I think your doctor is a tool (and not in the good sense of the word). Unfortunately I have no tips or advice on the subject. If I ever hear of anything I will share it here too....

 

[complicity]

Ashamed!

I came here today looking to post a rant Mainly because I have a few troubles and was feeling sorry for myself. After reading this thread I feel pretty ashamed of myself, and realise that there are people a lot worse off than myself. At least myself and my family have our health!

Stick with it guys!

Cheers