I sincerely apologised to Perky baby, and I must say sorry to the rest of you.

[Starfish]

I am sorry about my tirade, but I am also sorry that I just can't seem to keep a level head. There is too much emotion here and I get tied into it too easily. I can't handle it with a sick as I am.

I know I don't owe anyone anything, but for some reason I feel I won't be able to live up to the expecations of you good people with as hard as it is for me just to get through each day.

It looks like I will be going back into the hospital for testing. This will probably happen mid june, or the beginning of July. It turns out that I may actually have Mast Cell Disease. Something that my doctors never thought of, but my mother's best friend's sister has, and she suffered the same symptoms that I have been having. This is a diesase I know nothing about. She is sending me information, and I will do some reasearch. Anyone know anything about this disease?

I will say this, regardless of what this is, over the weekedn I've become very fucking scared. I really am not sure why, but I am afraid that my hopes of ever getting better are all in vain.

Anyway, thank you for putting up with my shit. I promise I won't post anymore agressive things, or anything that could be construed as such.

 

[red_rose]

We love you, Star.

You're one tough bitch.. and you WILL beat this... whatever it is.

 

[riff]

Huh? Wha?

Go paint.

(like I should talk- my prolific need to apoligise)

 

[TWB]

Try
http://www.acii.net/2002/2002i2edt.pdf
if you have Acrobat.

Fishie, sometimes its good to get pissed, even if it is misdirected. (I am not making any judgements because I don't even know what happened between you and perky). I get a burr up my butt at times.

I know you have many admirers here, and count me among them. Just get well.

twb

 

[freescorfr]

Fishy, I saw your post on Perky's thread - and understood well your fear that her rant might be humiliating for her stalker. I think that is a valid expression of your response, just as Perky's rant was an expression of her feelings.
I don't see anything wrong in expressing how we feel or see things. Unfortunately I have little time now to read them all through.
I aslo understand why guys chase Perky's ass: it's very chaseable.

Good health, Starfish.

 

[Calamity Jane]

Don't know if this'll help Fishie

Mastocytosis
What is mastocytosis?
Mastocytosis is a group of disorders in both children and adults caused by the presence of too many mast cells in a person's body. Located in skin, the linings of the stomach and intestine, as well as other sites, mast cells may play an important role in helping defend these tissues from disease. By releasing chemical "alarms" such as histamine, mast cells attract other key players of the immune defense system to areas of the body where they are needed.

Mast cells seem to have other roles as well. Because they gather together around wounds, mast cells may play a part in wound healing. For example, the typical itching you feel around a healing scab may be caused by histamine released by mast cells. Researchers also think mast cells may have a role in the growth of blood vessels. No one with too few or no mast cells has been found, which indicates to some scientists that we may not be able to survive with too few mast cells.

The presence of too many mast cells, or mastocytosis, can occur in two forms - cutaneous (skin) and systemic (involves internal body organs). Cutaneous mastocytosis (CM), the most common form, occurs when mast cells increase in the skin. It is also called urticaria pigmentosa. CM mostly affects children.

Systemic mastocytosis is caused when mast cells collect in the tissues and can affect organs such as the liver, spleen, lymph nodes, and bone marrow.

Scientists first described urticaria pigmentosa in 1869. Systemic mastocytosis was first reported by scientists in 1936. No one is sure how many people have either type of mastocytosis, but mastocytosis generally has been considered to be an "orphan disease." (Orphan diseases affect 200,000 or fewer people in the United States.) Mastocytosis, however, often may be misdiagnosed, and occur more frequently than assumed.


What are the symptoms of mastocytosis?
Chemicals released by mast cells cause changes in the immune system leading to typical allergy symptoms such as itching, abdominal cramping, and even anaphylaxis (dangerously low blood pressure).

When too many mast cells exist in a person's body, the additional chemicals can cause


Bone or muscle pain
Abdominal discomfort
Nausea and vomiting
Stomach ulcers
Diarrhea
Skin lesions
Episodes of very low blood pressure and faintness
Shock
How is mastocytosis diagnosed?
Doctors can diagnose urticaria pigmentosa by seeing the characteristic lesions which are dark-brown and fixed. A small skin sample may help confirm the diagnosis.

By taking a tiny piece of tissue from a different organ, such as the bone marrow, the doctor can diagnose systemic mastocytosis. Using special techniques on a bone marrow sample, the doctor looks for an increase in mast cells. Another sign of this disorder is high levels of certain mast-cell chemicals and proteins in a person's blood and sometimes in the urine.


How is mastocytosis treated?
Several medicines help treat the symptoms of mastocytosis.


Antihistamines to work against mast cell chemicals
Medicines to relieve cramping in the intestines
Medicines help treat other signs and symptoms of mastocytosis, including


Itching and other skin reactions
Ulcer-like symptoms
Low blood pressure
Inability to take up nutrients from food
In rare cases in which mastocytosis is cancerous or associated with a blood disorder, the patient may have to use steroids and/or chemotherapy.


Research
National Institute of Allergy and Infectious Diseases (NIAID) scientists have been studying and treating patients with mastocytosis for several years at the National Institutes of Health (NIH) Clinical Center.

Some of the most important research advances for this rare disorder include improved diagnosis of mast cell disease and identification of growth factors and genetic mechanisms responsible for increased mast cell production. Researchers are currently evaluating approaches to improve ways to treat mastocytosis.

Scientists also are focusing on identifying disease-associated mutations (changes in genes). NIH scientists have identified some mutations, which may help researchers understand the causes of mastocytosis, improve diagnosis, and develop better treatments.


For more information
National Institute of Allergy and Infectious Diseases
Building 31, Room 7A50, MSC 2520
31 Center Drive
Bethesda, MD 20892-2520
http://www.niaid.nih.gov

U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
301-496-6308
http://medlineplus.gov

National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
203-746-6518
http://www.rarediseases.org

Mastocytosis Society, Inc.
433 East 300 South
Spanish Fork, UT 84660
801-798-2032
http://www.mastocytosis.com

NIAID is a component of the National Institutes of Health (NIH). NIAID supports basic and applied research to prevent, diagnose, and treat infectious and immune-mediated illnesses, including HIV/AIDS and other sexually transmitted diseases, tuberculosis, malaria, autoimmune disorders, asthma and allergies.

--------------------------------------------------------------------------------
Press releases, fact sheets and other NIAID-related materials are available on the NIAID Web site at http://www.niaid.nih.gov.

Prepared by:
Office of Communications and Public Liaison
National Institute of Allergy and Infectious Diseases
National Institutes of Health
Bethesda, MD 20892

U.S. Department of Health and Human Services

 

[Guest]

I'll be praying for healing blessings to find you, Sea Star.
Thinking of you, love.

 

[Guest]

**yawn**

here we go again.

 

[Starfish]

PCG, Thank you, along with a few other things I found, I am taking this info to work with me to read.

Thank you guys. Thank you for understanding, but remember, I was not right in being mean about what I thought to Perky. She didnt' deserve it. I had no right to be so cold to such a woderful person.

Can I please ask that those of you who pray, please pray that if I have this disease that it is the indolent form and not leukemia. I really would appreiciate it.

I have to go to my job now, but I my heart is here with you guys.

 

[Starfish]

**yawn**

here we go again.

fine, you know what. I'm gone. this is fucking ridiculous. I can keep in touch with these people I care about and need in other ways.

You're kharma must be really fucked up.

 

[red_rose]

You are definitely in my prayers.

 

[Kitte]

Starfish,

Though we have not spoken directly I follow your postings and your art. I will light a candle for you. I keep you in my thoughts.

Kitte

 

[TygerEyez]

Fishy



Everyone gets mad, and everyone has said things they don't mean, or wish they could take back. It's called making a mistake. *smiles* I'm sure Perky understands in the long run, and you know we all understand.

Much love, my fellow Padawan.

 

[Guest]

Awww what's wrong fishy? It's only okay when you wanna be a bitch?

Too fucking bad.

Cry me a river and then go drown yourself in it.

 

[april-wine]

Fishie, don't let troll shit smell up your day....There are many here who think you are one cool chicka.....that includes your hither bitch......

 

[perks]

Fishie,

I didn't see this until right now.<hubby is home today and I'm lurking>
Both of our tempers were up yesterday.

Like I said in our PMs, it's past. All that matters now is that you get the support you need.

I think you are a good person, and very thoughtful.

If there is anything I can do for you. Listen to you scream or give you a verbal hug here and there let me know. I'll do whatever I can to ease your pain.

I'm sorry for the stress I added to your situation by arguing with you.

melanie

 

[Dhalgren]

For every one hundred whom love you..
You get one free troll from a stale box of cereal.


Nothing you can do about it.
Sad people exist..
Harmful humans exist..


Like my mom always says.."You can't turn over every starfish."
Well, you are one starfish that I'd really like to hug.


I wonder how people would react if suddenly their anonymous post showed their real name.

Would they hide in shame?

Doesn't matter in the long run..
Kharma knows her job and she does it quite well.

 

[Cheyenne]

*BUMP* so that more people see the prayer request.


Good luck, Starfish.

 

[CarolineOh]

PCG, Thank you, along with a few other things I found, I am taking this info to work with me to read.

Thank you guys. Thank you for understanding, but remember, I was not right in being mean about what I thought to Perky. She didnt' deserve it. I had no right to be so cold to such a woderful person.

Can I please ask that those of you who pray, please pray that if I have this disease that it is the indolent form and not leukemia. I really would appreiciate it.

I have to go to my job now, but I my heart is here with you guys.

You will be in my prayers, Starfish.

 

[glamorilla]

Mine too.

You're fun.

 

[Cirrus]

Starfish, please don't take this as condescending or an insult, it isn't meant as either. Maybe you need to worry about you and your health before you try to tackle emotions and matters that you find here.

 

[KillerMuffin]

We still love you, darlin, even when you act like me. Just knock it off cause I've been acting like you and it's seriously creeping me out.

I'm being nice to freakjobs and someone thinks it's my dog.

This is sooooooooo wrong.

You be Fishie.
I'll be Muffie.

Life will go on.

In the meantime though, you're on my mind and in my heart. As you always are.

 

[Suzi]

Hmmmmmmmmmmmm.....

Fishie dear...I am sorry this is happening to you. I pray it is something they can treat and be successful at treating. I hope that you have loved ones near you that you can lean on. I wish, more than anything else, that I could be there, just to put my arms around you, and hold you. Right now, it helps to unload your frustrations, anger, sadness...keeping it bottled up will not help you heal. Sometimes getting angry can help motivate you to find a solution. Just try to stay positive and hopeful.

*Big Bear Hugs*

Suzi

 

[lickerish]

Fishie, please don't go. I love you, dear friend.. and don't tell me we'll keep in touch by email (I know we will) but I want you here. With us. Your friends. I don't care about the stupid fucking dimwit troll (even that's too good a word for it) it can go to god damn hell... and you shouldn't care either.. you've got like 50 friends who care and love and respect you, to one dumbass troll.

Babydoll, don't leave on it's account.

 

[Rubyfruit]

Fishie, please take care of yourself and get well.

xoxoxoxo
K