CF Awareness Week Oct 13-19

[HoldenMcCrank]

CF stands for Cystic Fibrosis. If you would like to know more about CF you can visit the Cystic Fibrosis Foundations site www.cff.org or www.cfawareness.org

CF is a Genetic disease that affects the Respitory as well as the digestive systems. It is Fatal in all cases.

Symptoms

* Very Salty tasting Skin
* Persistent cough
* Wheesing or Pneumonia
* Excessive appetite but poor weight gain

CF Facts

* An estimated 30,000 people have CF in the US
* 1 in 31 People ( more then 10 million ) are UNKNOWN carriers of the defective gene.
* CF is the most common Fatal Genetic Disease of Children
* 80% of families that have a child with CF have no family history of CF

If you want to know more PM me or visist one of the sites above.

Thanks
Holden

 

[weed]

I'll add something....there's a test for the most common genes for CF that can be done with a simple scraping of cells from inside the cheek. It is often offered to couples who are pregnant or planning pregnancy to better prepare them especially with a family history.

It's considered fatal but cases vary. I know one woman with a mild case (some gi probs) who was healthy enough in her 30's to have two children.

 

[HoldenMcCrank]

Thanks weed

They have made Great Strides in treating CF in the last 10 years. But there is still a Long way to go. To many Kids are not getting diagnosed (sp) until they are 4, 5 or 6 years old. The test for CF is called a Sweat Test and it is Painless. If you think your child or someone else child may have CF. Please suggest that they have a sweat test done.

Thanks
Holden

 

[someplace]

I appreciate the information Holden. I know this is an area very close to your heart. I hope you and yours have a good weekend.

 

[Bluesboy2]

Bumps

because I am a samaritan

 

[littlekateyes]

A nice little *bump*

 

[someplace]

I sure hope everyone has read this, it's important to know.

 

[someplace]

Bumping for the Sat evening crew and so I can give another to Holden.

 

[someplace]

Just wondering

Did everyone get a chance to see this?????

 

[HoldenMcCrank]

Thank you Someplace

Hope you had a great weekend!

Always
Holden

 

[someplace]

Restful sweetie. How about yours? I bet your activity made up for my inactivity.

 

[someplace]

Reviving in honor of the Birthday Boy!