Anticipatory grief in a M/s dynamic.

fuckmeat

That all you got?
Joined
Apr 19, 2010
Posts
2,492
I don't really know what I'm asking here. I don't want to post this in BDSM because there's an uber troll over there right now who will grab this with both hands and shit on it, which I seriously couldn't handle right now. I just need all this to be somewhere other than my head, somewhere where someone might understand. Sorry for the epic post.

My partner and Mistress of nearly four years has an aggressive type of leukaemia and her condition is now officially terminal. She has been battling this for months and is now too weak for more aggressive chemo or a marrow transplant. Her treatment now will be palliative. We are both nurses, it's how we met, so we have no illusions about what Mistress will endure in the time she has left. We thought she had 3-6months but now that's looking like 3 months at best. Her quality of life will deteriorate, so I don't even know whether I want her to hang on for three months.

I've been seeing a counsellor through CRUSE, a UK charity for the bereaved. He says I have anticipatory grief and have been suffering from it for some time. I took a sabbatical from my job in order to care for Mistress full time and now she's in hospital again, I simply don't know what to do with myself. There's only so much fussing she can handle and I try not to cry around her because it just makes her feel guilty for dying, which doesn't help anyone.

G's family are West Indian. They're devout christians who do not accept her lesbianism or our relationship, even now. Obviously they have no notion about the D/s side of things but they would be nothing short of appalled. I am having to advocate G's wishes and we have had legal papers drawn up giving me that authority, because her parents would impose their own beliefs on her living will and end of life choices. The whole time G has been ill, I have done my best not to cross paths with her family. I have gone out when they visit, I have been excluded from family gatherings the whole time we've been together. I have treated them politely and respectfully whenever it's been unavoidable that we're in the same room together. They have never been outright rude to me but their dislike of me is palpable. They seem to think that I have somehow corrupted and perverted their daughter, when in truth it was the other way around.

Now though, we all want to make the most of the time we have left with her. G's family are spending a lot of time with her and other relatives from further away are coming to visit her. The time I have with her is basically being curtailed to the evenings, when she's exhausted and heavily medicated. And now I am having to cross swords with her family and over-rule them on certain aspects of G's care. A large part of me couldn't care less what they think of me but I know the situation is stressing G out, which is the last thing she needs. A former colleague of hers even announced the other day that G needed some tests running. I wasn't aware of any tests and it turned out that she had quietly but firmly escorted them off of the ward so I could help Mistress with her lunch and have some time with her. So even to casual observers it's obvious that I'm constantly being elbowed aside.

I feel for them. I do. She is their daughter and they actually believe she's likely to go to hell. They've been sending a vicar in to talk to her but she's really not interested. Things are getting petty. I'm beginning to feel like her parents disagree with every decision we make about her care on principle. They don't seem to acknowledge in any way that my grief is as raw and painful as theirs. An uncle of hers even approached me in the hospital cafe to tell me to stay away and let the family take over. It seems to count for nothing whatsoever that G chose to spend four years of her life with me. And it's the little things that piss me off. G's parents drive right by my place to visit her but I either take two buses or cycle. They don't care that if I turn up and they've all descended on her bedside, I have wasted over an hour to get there and will waste another to get home. I've asked G's mum about agreeing visiting times for both of us but she isn't interested. If I was more cynical, I'd swear she was shaking down the country for distant family members just to keep her precious daughter surrounded. Other people are now booking flights from Tobago and once they all land it'll be pandemonium. For the sake of appearances, I did offer to accommodate some of G's visiting relatives but I'm fairly sure her parents would rather put them up in a brothel.

Mistress would ordinarily tell her parents to be reasonable and limit the visits she gets from them. I know she has a lot of guilt though, for making choices that they think are morally reprehensible. She hasn't been that close to her parents since university and I think she feels like she owes them this time. I also think she's beginning to get really scared about dying and the possibility that they might be right and she might have pissed off God. I've been hoping that she'll get sick of all the fussing and speak out but she hasn't so far and I don't feel like it's my place. I'm beginning to feel like maybe I should just step back. I'm beginning to feel like I've lost her already.

So now I'm just utterly lost. I feel very alone, so alone. I have friends within the local GLBT community but they wouldn't understand our M/s dynamic. We've never really been part of a local BDSM scene or anything because the munches are all attended by 40+ hetero divorcees. My vanilla friends just don't know what to say. They think the fact we're an interracial lesbian couple is more than controversial enough. I haven't opened up to the counsellor about our M/s dynamic and when I'm upset, I'm not so good at talking about us as a vanilla couple, which can make G look like a bit of a controlling diva. He has even asked more than once if she was ever violent or abusive to me. (is it abuse if I beg for it?) He basically knows that there's something fairly fundamental to our relationship that I'm not sharing with him. I'm beginning to wonder whether there's any point to counselling when I have to edit everything so heavily before I discuss it.

I do have two wonderful new kinky acquaintances through lit who I can talk to at length via IM and that's helped tremendously, particularly as one of them has battled cancer successfully herself. My laptop's not so good at hugs though. I'm making my cats compensate.

I can't plan anything. I feel guilty if I look to the future and exclude her from it. I'm forgetting to eat and even forgetting my meds sometimes, which isn't great. I'm drinking more, mostly just to sleep but my tolerance is rising, which is not a good path to be on. I'm beginning to like oblivion a bit too much. Where I used to have a glass or two of wine, I'll have a bottle. Most sleep meds clash with other meds I'm on and the herbal stuff doesn't touch me. I'm letting myself go, having junk when I do eat, living in slobby clothes and doing zero exercise that isn't about getting from A to B. I just feel empty and I'm going to feel empty for a long time. I'm not coping well with being in limbo and not being able to spend much time with G is killing me. I seem to be either restless and agitated or so fatigued that it's like my brain's trying to shut down. I don't know how I'm going to handle months of this. Then I feel weak and useless and stupid. G's the one with cancer but it's me who's falling apart. She's being so brave and so bloody practical. I feel like I'm failing her.

Ok. I'm going to stop now. If you've got this far, my sincere thanks for reading.

:rose:
 
I am so sorry for all that you are going through. I don't have any help for you, but I wanted to let you know people are listening, if that helps any.
 
If it helps any, sweetheart, that troll you mentioned has been banned, and cannot hurt you in the BDSM forum.

I think you should talk to the people there, too. I think they can help you.
 
my heart goes out when I read something like this. A person in so much pain...actually...two...you and your mistress. When life tosses shit balls at me, one thing that helps me get back into the moment is asking myself that if I could do it all over again, knowing what I do today, would I or would I not do it again? Realizing that I would somehow takes the pain I am feeling and makes it MY choice and I am able to once again function in the moment. It is not diminishing the pain, but it is affirming that even with the greatest pain one can feel, it was so fucking worth it. That I am who I am today because of having this person in my life. I don't know if I can adequately describe what I mean...but you are never, ever really alone unless you choose to be. :rose:
 
If it helps any, sweetheart, that troll you mentioned has been banned, and cannot hurt you in the BDSM forum.

I think you should talk to the people there, too. I think they can help you.

Yeah. He's still got his aliases though. I don't think he's likely to take the hint yet.
 
I want you to know that I (and obviously others as well) care about your grief and suffering. You and your Mistress obviously love each other very deeply and are doing the best you can to take care not only of yourselves but also of each other.

I personally have found counseling hugely helpful at various times in my life. BUT! Not every counselor is the right one. I encourage you to consider sounding this person out about their D:s views. Or, consider looking for someone new (but keep seeing the former person until you find the new one).

My heart goes out to you and how lost you feel. Please don't be a stranger.
 
Dear fuckmeat, I was crying while reading your post. I can't imagine how difficult it has been just dealing with your Mistress' family, let alone the grief at her cancer. I don't really know of anything to say that could help you except that we are all here to listen to you and be here for you, and if I could get on a plane to give you a hug I would.

Stay strong, be positive. I'm sure your Mistress' heart is bursting with pride for you :heart:
 
Dear fuckmeat, I was crying while reading your post. I can't imagine how difficult it has been just dealing with your Mistress' family, let alone the grief at her cancer. I don't really know of anything to say that could help you except that we are all here to listen to you and be here for you, and if I could get on a plane to give you a hug I would.

Stay strong, be positive. I'm sure your Mistress' heart is bursting with pride for you :heart:

Aww! Now you're making me cry!

Thanks BB. I've had some lovely pms since I posted this and just writing it all out and getting it somewhere public was good for me I think.
 
where to start?

I can't really address the M/s dynamic in this, but I can address the other issues. I lost my husband to melanoma almost 2.5 years ago. I can tell you that your grief is actually greater than her family's. You're her sub/partner/lover/supporter. You each CHOSE to live your lives together. That bond is stronger than any aunt, uncle, cousin, brother, sister, even mother and father. She chose you to make decisions about her care and life. That's as intimate as it gets. You each CHOSE to share parts of yourselves that no one else would ever experience. It is important for you to be there. In the near future, she will need you to take care of her in ways that others can't or can't do for her comfortably. If you arrive at the hospital and her family is there, STAY. Just stay quiet. Wait for her to ask for you. She will be well aware of your presence and find comfort there. Even when it gets to the point that she can only smell you or feel your touch, it will help you both. Perhaps her family will see the tenderness and love you have for her and she for you. (well...maybe not tenderness on her part. Clearly you aren't into tender. LOL) I would suggest that you talk to the counselor about your relationship. There's nothing at all wrong with you two. He/she clearly knows that you aren't giving fully in therapy. You have nothing to lose in sharing that.

While dealing with my husband's last days/months I let myself go as well. I won't lie. It got worse after his death. It was a relief that he passed and his pain was over, in some ways. I was also honored to have the chance to know him, love him, share with him, and help him with this most profound and mysterious part of life. You will be in terrible pain after you lose her. It will not go away for a long long time. That is perfectly normal. You will be a widow and everything that goes with it. It ain't pretty, trust me.

On to practical matters. Set an alarm on your phone for you to take your meds. Always have them with you, so that you can take them when needed. My sleep pattern, etc. were completely out of whack. Feeding myself was a chore. Clothing myself a chore. You will also have the loss of not knowing what to do with yourself after all the duties of treatment, hospital visits, etc. It's a shock when it goes away. I found myself asking, "now what do I do?" No matter how much you prepare yourself, you will go into a sort of shock/fog for some time.

Has she made a will and any plans for what to do with her body? I know it's ugly, but practical. My husband had a notary in his hospital room the day he was admitted for the last time and the day before he died. Thank goodness. His mother had no say, but she wanted it. You'll need to be tough and determined to carry out her wishes.

I'm going to shut up now. I'm sure I could blather on for a while. I hope this helps a bit. If you have any questions, concerns, feel free to contact me.

I'm a member on a young widow support board. My screen name there is pretty clear. ywbb.org Come, read, etc.

I'm so sorry that you both are going through this. I sucks!:cattail:
 
when an individual chooses to share their first post in such a manner as was just done, you know it comes from the right place. Thank you for joining.
 
thanks

I hope she reads and it helps. There aren't many young widows, let alone those that are open about sexuality. I'm 36. My husband died at 37. My post was the first time I had something to offer that others apparently couldn't. We're a rare breed. You all do a great job with all of the other issues. Reading stories here got me through quite a few...um...challenging times. Thanks to all who contribute regularly.
 
I can't really address the M/s dynamic in this, but I can address the other issues. I lost my husband to melanoma almost 2.5 years ago. I can tell you that your grief is actually greater than her family's. You're her sub/partner/lover/supporter. You each CHOSE to live your lives together. That bond is stronger than any aunt, uncle, cousin, brother, sister, even mother and father. She chose you to make decisions about her care and life. That's as intimate as it gets. You each CHOSE to share parts of yourselves that no one else would ever experience. It is important for you to be there. In the near future, she will need you to take care of her in ways that others can't or can't do for her comfortably. If you arrive at the hospital and her family is there, STAY. Just stay quiet. Wait for her to ask for you. She will be well aware of your presence and find comfort there. Even when it gets to the point that she can only smell you or feel your touch, it will help you both. Perhaps her family will see the tenderness and love you have for her and she for you. (well...maybe not tenderness on her part. Clearly you aren't into tender. LOL) I would suggest that you talk to the counselor about your relationship. There's nothing at all wrong with you two. He/she clearly knows that you aren't giving fully in therapy. You have nothing to lose in sharing that.

While dealing with my husband's last days/months I let myself go as well. I won't lie. It got worse after his death. It was a relief that he passed and his pain was over, in some ways. I was also honored to have the chance to know him, love him, share with him, and help him with this most profound and mysterious part of life. You will be in terrible pain after you lose her. It will not go away for a long long time. That is perfectly normal. You will be a widow and everything that goes with it. It ain't pretty, trust me.

On to practical matters. Set an alarm on your phone for you to take your meds. Always have them with you, so that you can take them when needed. My sleep pattern, etc. were completely out of whack. Feeding myself was a chore. Clothing myself a chore. You will also have the loss of not knowing what to do with yourself after all the duties of treatment, hospital visits, etc. It's a shock when it goes away. I found myself asking, "now what do I do?" No matter how much you prepare yourself, you will go into a sort of shock/fog for some time.

Has she made a will and any plans for what to do with her body? I know it's ugly, but practical. My husband had a notary in his hospital room the day he was admitted for the last time and the day before he died. Thank goodness. His mother had no say, but she wanted it. You'll need to be tough and determined to carry out her wishes.

I'm going to shut up now. I'm sure I could blather on for a while. I hope this helps a bit. If you have any questions, concerns, feel free to contact me.

I'm a member on a young widow support board. My screen name there is pretty clear. ywbb.org Come, read, etc.

I'm so sorry that you both are going through this. I sucks!:cattail:

Thanks Sophie, there were a lot of things in that post that I needed to hear. I hope that you don't go quiet again. CB is right, Lit could use more posters like you. Welcome :rose:

As for G's wishes regarding her remains, she would have liked to have been buried but there isn't the money for anything like that. Here in the UK, graveyards are filling up and space is very expensive. She wants to be an organ donor, especially because her ethnicity is the main reason no bone marrow match was found on the register for her. So she will be cremated and she wants her ashes scattered at a local beauty spot.
 
Just wanted to say I'm so sorry you're having to go through this! I think it might be possible G is going along with her families wishes, but would prefer you elbow them aside for a change. If that's your feeling as well, do it.
 
just do whatever you feel is right on any given day. dealing with facing death, for her i'm sure, is daunting enough.... i would do whatever i could to make sure that this time of preparation and reflection is at least marginally tranquil. and if she desires to make peace with god on some level, even if it isn't congruent with how she's lived, make it happen. just keeping serving her until the end, and when she can't make decisions for herself anymore, follow to the letter her final wishes. :rose:
 
*hugs*

Dealing with a family that doesn't like you can be incredibly difficult and disheartening, I know from experience. Your Mistress' family sound just awful when it comes to you.

I agree with Sophie, if you're there and they arrive, don't leave. If they're there when you arrive, wait in a corner of the room for them to go or her to ask for you. Her family is important but you're the one she trusted with the last four years of her life and the end of her life.

Don't interact with them beyond acknowledging that they're a body in the room. Focus on G and let her family worry and bitch itself to hell on its own.

For you personally, don't give up on life. It sucks, Lord & Lady it does, but G wouldn't want you to let it destroy you. You're going to fall apart sometimes, its a part of the grieving process, don't beat yourself up about it. The best you can do is get up each morning and do the best you can that day, even if its holding her hand while she turns away a vicar or doing laundry.

I'm pretty sure it was Etolie who has a list, but I know someone on the BDSM board has a list of BDSM and GLBT friendly therapists. You might post over there looking for one.
 
My heart goes out to you and your Mistress. During the time that I grieved the most, I just got up each day, kept breathing and took things one step at a time. Your best will vary from day to day, and that's okay. I wish I could give you a big hug right now :rose:
 
The troll problem on BDSM Talk that I mentioned in post 1 has been dealt with now. The poster has finally got himself banned. So on the advice of satin and others here, I posted post 1 over there as well and I've had some great advice and support.

Here is a recent update I posted there yesterday. On the whole, it's actually quite positive.
 
Back
Top