Hotpinktoenails
Virgin
- Joined
- Aug 1, 2014
- Posts
- 3
I also have fibro. I am so very sorry, hon. (In my case it brought lots of friends as well.) My rheumatologist is simply wonderful. The best thing I can tell you is not to give up!
Eventually you and your team of docs will find something that will work FOR YOU. Since we are all different, what works for one might not for another. Some simple truths:
- use heat and ice...whichever feels best at the time
- do not over-do!!!
- when hands and/or feet are hurting, rubbing gently and repeatedly on something soft and nubbly (for example, a velvet covered pillow, a blanket, blue jeans) tricks your mind into not feeling the pain,and feels GREAT!
- learn to say no. Seriously. It causes way too much overdoing.
- rest whenever possible!
- read "The Spoon Theory". It'll do you a world of good!! Www.butyoudontlooksick.com
- if you haven't already started, keep a pain diary. Be sure to include what you eat, drink, physically do, amount of sleep, the temperature, weather, humidity level (that one kills me), pain level, what and when you take anything for pain, and anything else you can think of. Share with docs...!
- do you have a place that offers water aerobics?
- in my case, fluid retention seems to make my fibro symptoms more accute. Drink lots of liquid
Just follow your instincts. Your body wants you to take care of it, it just doesn't remember that you know how :/
Please feel free to pm me! <<<gentle hugs>>>
Eventually you and your team of docs will find something that will work FOR YOU. Since we are all different, what works for one might not for another. Some simple truths:
- use heat and ice...whichever feels best at the time
- do not over-do!!!
- when hands and/or feet are hurting, rubbing gently and repeatedly on something soft and nubbly (for example, a velvet covered pillow, a blanket, blue jeans) tricks your mind into not feeling the pain,and feels GREAT!
- learn to say no. Seriously. It causes way too much overdoing.
- rest whenever possible!
- read "The Spoon Theory". It'll do you a world of good!! Www.butyoudontlooksick.com
- if you haven't already started, keep a pain diary. Be sure to include what you eat, drink, physically do, amount of sleep, the temperature, weather, humidity level (that one kills me), pain level, what and when you take anything for pain, and anything else you can think of. Share with docs...!
- do you have a place that offers water aerobics?
- in my case, fluid retention seems to make my fibro symptoms more accute. Drink lots of liquid
Just follow your instincts. Your body wants you to take care of it, it just doesn't remember that you know how :/
Please feel free to pm me! <<<gentle hugs>>>